Women with Bleeding Disorders

Although hemophilia is thought of as a man’s bleeding disorder, women can have it, too. The most common bleeding disorder is von Willebrand disease (VWD), which occurs in about 1% of the US population. Symptoms include nosebleeds, easy bruising, and heavy and prolonged menstrual periods that last longer than a week, also known as menorrhagia.

The National Bleeding Disorders Foundation’s Victory for Women website has all the information you need about symptoms, testing and diagnosis, and managing your bleeding disorder.

Women with Bleeding Disorders

If you have symptoms of a bleeding disorder, your life can be better if you know. Better if you seek care. Better if you get treatment. Find out if you are at risk, and take the first step in feeling better. Better You Know.

What is von Willebrand Disease?

VWD is the most common bleeding disorder, found in up to 1% of the U.S. population. This means that 3.2 million (or about 1 in every 100) people in the United States have the disease. Although VWD occurs among men and women equally, women are more likely to notice the symptoms because of heavy or abnormal bleeding during their menstrual periods and after childbirth. There are 3 major types of VWD: Type 1, Type 2, and Type 3.

GHA hosts a regional FAB (Females and Bleeding) Disorders conference each October. Visit GHA’s list of events for additional information.

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02/28/2024

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

03/03/2024

March Membership Meeting

Start Time: 12:30 p.m.

End Time: 2:30 p.m.

Join us for an update on resources offered from your chapter and HTCs. One of the best parts of being your own advocate is that you don’t have to solve all the problems on your own. You can and should ask for help. Register at carly@gatewayhemophilia.org by February 23.

Agenda:

12:30 – Attendees Arrival and Welcome

12:45 – Lunch

12:55 – Welcome from Executive Director

1:00 – Program

1:30 – 2:30 Yard Games and Pickleball Activity

03/06/2024

NBDF’s Washington Days

Make your voice be heard at NBDF’s Washington Days

Join us to:

  • Meet with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care
  • Learn effective grassroots advocacy techniques

GHA’s scholarship is now closed.

For more information and updates related to Washington Days 2024, visit NBDF’s website

chapter of excellence award from national hemophilia association 2017
chapter of excellence award from the national hemophilia association from 2018 - 2020

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