Women with Bleeding Disorders

Although hemophilia is thought of as a man’s bleeding disorder, women can have it, too. The most common bleeding disorder is von Willebrand disease (VWD), which occurs in about 1% of the US population. Symptoms include nosebleeds, easy bruising, and heavy and prolonged menstrual periods that last longer than a week, also known as menorrhagia.

The National Bleeding Disorders Foundation’s Victory for Women website has all the information you need about symptoms, testing and diagnosis, and managing your bleeding disorder.

Women with Bleeding Disorders

If you have symptoms of a bleeding disorder, your life can be better if you know. Better if you seek care. Better if you get treatment. Find out if you are at risk, and take the first step in feeling better. Better You Know.

What is von Willebrand Disease?

VWD is the most common bleeding disorder, found in up to 1% of the U.S. population. This means that 3.2 million (or about 1 in every 100) people in the United States have the disease. Although VWD occurs among men and women equally, women are more likely to notice the symptoms because of heavy or abnormal bleeding during their menstrual periods and after childbirth. There are 3 major types of VWD: Type 1, Type 2, and Type 3.

GHA hosts a regional FAB (Females and Bleeding) Disorders conference each October. Visit GHA’s list of events for additional information.

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Upcoming Events
06/21/2024

Ryze Adventure Park

Start Time: 6:00 p.m.

End Time: 8:00 p.m.

 

St. Louis ropes course, zipline, and mini-golf. RSVP to carly@gatewayhemophilia.org by 6/14.

Sponsored by:

07/12/2024

Family Education Weekend

As an organization dedicated to the education and advocacy for our community, we decided 29 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Registration deadline June 14, 2024. Register here!

Please contact info@gatewayhemophilia.org with any questions.

07/14/2024

Unite for Bleeding Disorders Walk & 5K

Start Time: 9:30 a.m. (registration at 8:30 a.m.)

Click here to register!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research.

Click here for the 2023 Walk Newspaper!

Click here for the 2019 video!

chapter of excellence award from national hemophilia association 2017
chapter of excellence award from the national hemophilia association from 2018 - 2020

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