Privacy Policy

Privacy Notice

This privacy notice discloses the privacy practices for http://www.gatewayhemophilia.org/. This privacy notice applies solely to information collected by this web site. It will notify you of the following: 

  1. What personally identifiable information is collected from you through the web site, how it is used and with whom it may be shared. 
  2. What choices are available to you regarding the use of your data. 
  3. The security procedures in place to protect the misuse of your information. 
  4. How you can correct any inaccuracies in the information. 
  1. How policy changes will be communicated.

Information Collection, Use, and Sharing
We are the sole owners of the information collected on this site. We only have access to/collect information that you voluntarily give us via email or other direct contact from you. We will not sell or rent this information to anyone.  We collect your name and address for GHA mailings only. 

We will use your information to respond to you, regarding the reason you contacted us. We will not share your information with any third party outside of our organization, other than as necessary to fulfill your request, e.g. to ship an order. 

Unless you ask us not to, we may contact you via email in the future to tell you about educational programs, new products or services, or changes to this privacy policy. 

Your Access to and Control Over Information
You may opt out of any future contacts from us at any time. You can do the following at any time by contacting us via the email address or phone number given on our website: 

  • See what data we have about you, if any. 
  • Change/correct any data we have about you. 
  • Have us delete any data we have about you. 
  • Express any concern you have about our use of your data. 

Security
We take precautions to protect your information. When you submit sensitive information via the website, your information is protected both online and offline.

Wherever we collect sensitive information (such as credit card data), that information is encrypted and transmitted to us in a secure way. You can verify this by looking for a closed lock icon at the bottom of your web browser, or looking for “https” at the beginning of the address of the web page. 

While we use encryption to protect sensitive information transmitted online, we also protect your information offline. Only employees who need the information to perform a specific job (for example, billing or customer service) are granted access to personally identifiable information. The computers/servers in which we store personally identifiable information are kept in a secure environment. 

Changes to this Policy

We may make changes to this privacy notice from time to time.  You may check back on this page at any time to see our current policy.

If you feel that we are not abiding by this privacy policy, you should contact us immediately via telephone at 314-482-5973 or via email at info@gatewayhemophilia.org. 

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Upcoming Events
06/21/2024

Ryze Adventure Park

Start Time: 6:00 p.m.

End Time: 8:00 p.m.

 

St. Louis ropes course, zipline, and mini-golf. RSVP to carly@gatewayhemophilia.org by 6/14.

Sponsored by:

07/12/2024

Family Education Weekend

As an organization dedicated to the education and advocacy for our community, we decided 29 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Registration deadline June 14, 2024. Register here!

Please contact info@gatewayhemophilia.org with any questions.

07/14/2024

Unite for Bleeding Disorders Walk & 5K

Start Time: 9:30 a.m. (registration at 8:30 a.m.)

Click here to register!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research.

Click here for the 2023 Walk Newspaper!

Click here for the 2019 video!

chapter of excellence award from national hemophilia association 2017
chapter of excellence award from the national hemophilia association from 2018 - 2020

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