MO Advocacy Day

Missouri Advocacy Day, Tuesday, February 6th!

MO State Capitol

Join us and let our voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy. We will be advocating for support of All Copays Count legislation Register by January 28.

Please contact us if you have any questions at  info@GatewayHemophilia.org.

#AllCopaysCount Check out a video here that explains Copay Accumulator

We are offer training on the All Copays Count legislation in Missouri on Wednesday, January 31, at 7:00 p.m. over zoom. Register in advance for this training here.
After registering, you will receive a confirmation email containing information about joining the meeting.

We will meet at 11:00 a.m. at The Capitol Plaza Hotel, 415 W McCarty Street, Jefferson City, MO 65101 for registration and lunch.

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MO Advocacy Day

GHA and MHA's Missouri Advocacy Day is designed for individuals and their families living in Missouri affected by bleeding disorders. We will offer training over lunch on Tuesday, February 6, at 11:00 a.m. central in Jefferson City, MO.

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Upcoming Events
02/28/2024

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

03/03/2024

March Membership Meeting

Start Time: 12:30 p.m.

End Time: 2:30 p.m.

Join us for an update on resources offered from your chapter and HTCs. One of the best parts of being your own advocate is that you don’t have to solve all the problems on your own. You can and should ask for help. Register at carly@gatewayhemophilia.org by February 23.

Agenda:

12:30 – Attendees Arrival and Welcome

12:45 – Lunch

12:55 – Welcome from Executive Director

1:00 – Program

1:30 – 2:30 Yard Games and Pickleball Activity

03/06/2024

NBDF’s Washington Days

Make your voice be heard at NBDF’s Washington Days

Join us to:

  • Meet with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care
  • Learn effective grassroots advocacy techniques

GHA’s scholarship is now closed.

For more information and updates related to Washington Days 2024, visit NBDF’s website

chapter of excellence award from national hemophilia association 2017
chapter of excellence award from the national hemophilia association from 2018 - 2020

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