Family Education Weekend

One of our most popular programs is Family Education Weekend (FEW), the only program of its kind in the Greater St. Louis area. It provides those affected by bleeding disorders an opportunity to learn about the latest trends in the bleeding disorders community while connecting with other families that are experiencing some of the same health issues. It helps them to become more knowledgeable about their disorder and to develop a stronger support system that benefits the emotional health of individuals. Contact Bridget at Info@GatewayHemophilia.org with any questions.

FEW will take place July 10 – 11, 2020 at The Doubletree Chesterfield, 16625 Swingley Ridge Road, Chesterfield, MO 63017.

The deadline to register to attend in person was July 1. You may still attend virtually. Visit GHA’s events page for virtual options.

Know Before You Go Know Before You Go, Guidelines in Place!

2020 Exhibitors

Accredo (virtually)       ARJ Infusion Services                Bayer  (virtually)                     BioMarin

CSL Behring               CVS Specialty (virtually)             Diplomat                                 FOSRX / FAST Pharmacy InfuCare Rx, Inc. 

Genentech (virtually)   Heritage Biologics                     Novo Nordisk                         Octapharma 

Paragon Healthcare    Sanofi Genzyme (virtually)     Superior Biologics

 

Program Descriptions

Click Agenda to print the Agenda:

Friday July 10, 2020

6:30 – 7:30 PM           Registration                                                                            Ballroom Foyer

6:30 – 8:00 PM           Exhibits, Meet Your Board & Donor Recognition Reception  Ballroom A, B, C

8:15 – 9:45 PM           Bombardier Blood                                                                  Ballroom A, B, C

 

Saturday July 11, 2020

8:30 – 9:30 AM          Breakfast                                                                                Ballroom A, B, C

8:30 – 10:00 AM        Registration & Exhibits                                                           Ballroom A, B, C

8:30 – 9:15 AM          Self-Infusion – Life Lessons                                                   Ballroom D

9:00 – 9:45 AM          Daycare Drop-Off                                                                   Board Room 4

10:00 – 10:20 AM      Welcome & Opening Remarks  (virtual)                                 Ballroom A, B, C

10:20 – 11:30 AM      Clarity in the Midst of Uncertainty (virtual)                             Ballroom A, B, C

11:30– 12:30 PM        Lunch & Exhibits                                                                   Ballroom A, B, C

12:30                           Group Photo                                                                        Outside Conference Area

 

AFTERNOON BREAKOUTS #1

1:00 – 4:00 PM           Clot Shots, Teen program for 12 and older                           Ballroom D

1:00 – 1:50 PM           PTSD in Chronic Conditions (virtual)                                   Great Room A

1:00 – 1:50 PM           Clinical Trials and Product Update (virtual)                          Great Room B

 

AFTERNOON BREAKOUTS #2

2:00 – 2:50 PM           Insurance Basics, Coverage, & Assistance Programs (virtual)  Great Room A

2:00 – 2:50 PM           Joints & Ultrasound Detection                                               Great Room B

2:00 – 2:50 PM           Transitioning, Growing Up (virtual)                                     Conference Room A

 

AFTERNOON ROUNDTABLES

3:00 – 4:00 PM           Family Roundtable                                                                 Great Room A

3:00 – 4:00 PM           Young Adult Roundtable                                                       Great Room B

3:00 – 4:00 PM           Grandparents Roundtable                                                       Board Room 1

 

EVENING EVENTS

6:00 – 07:30 PM         Awards Dinner, Raffle & Closing Remarks                           Ballroom A, B, C

8:00 – 10:00 PM         Dive in Movie at the Pool                                                      Outdoor Pool

 

Sunday July 12, 2020

7:00 – 07:30 AM         Polar Plunge                                                                              Outdoor Pool

8:30 – 9:30 AM          Unite for Bleeding Disorders Walk & Breakfast                   Outside parking lot