Supported by the World Federation of Hemophilia (WFH), hemophilia awareness day was first established in 1989. The date of 17th April was chosen to honor Frank Schnabel the founder of WFH, whose birthday falls on the same date.

Click here for more information and events for World Hemophilia Day. 

Bleeding disorders can impact how you respond to emergencies, such as accidents, trauma, or natural disasters. This program will help you and your family to develop an emergency plan that’s right for you.
Speaker: April Littrell

RSVP to jmcnamee@gatewayhemophilia.org

Sponsored by:

More info coming soon.

Sponsored by:

As an organization dedicated to the education and advocacy for our community, we decided 24 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Please contact info@gatewayhemophilia.org with any questions. 2020 Theme: You Always Need to Factor in Home

We are looking for volunteers for GHA’s Unite for Bleeding Disorders Walk and 5K on July 12, 2020 at the DoubleTree Chesterfield Hotel!

Volunteer Opportunities:

Course Volunteer: volunteers will be on the 1 mile or 5K course to direct walkers and runners. Time 8:45 a.m. – 10:30 a.m.

Set Up Crew: Setting up tables, tents, and chairs at the walk site. Time 6:15 a.m. – 8:15 a.m.

Break Down Crew: Break down tents, tables, and chairs after the event is over. Time 10:30 a.m. – 12:00 p.m.

Registration Table: Hand out event t-shirts. Time 8:00 a.m. – 10:00 a.m.

SIGN UP HERE

If you have any questions, contact Jen at jmcnamee@gatewayhemophilia.org

Register Here!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research.

Click here for the 2019 video!

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s Bleeding Disorders Conference in Atlanta, GA, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate August 6-8, 2020.

Click Here for GHA’s Scholarship application, which is due May 1, 2020.

NHF’s Bleeding Disorders Conference Info

We are stronger together!

Click here to register

DEADLINE July 15, 2020

The Adult Retreat is for adults with a bleeding disorder ages 20+. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN!

All proceeds from GHA’s Wine Tasting fundraising will benefit the educational scholarship fund for our members with a bleeding disorder who are furthering their education.

Click here to register!

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters. GHA’s scholarship application closed January 20, 2020.

Click here to register with HFA or for more information.

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

SCHEDULE:

10:00 am…Registration & Putting Contest

11:00 am…Lunch, Silent Auction & Driving Range

12:00 pm…Shotgun Start

5:00 pm..…Reception & Silent Auction

5:30 pm…..Dinner & Awards

Speaker: Jessica Lovercamp, RN

This Jivi Patient Program will review:

• What is Jivi?
• What is the safety and bleed protection information for Jivi?
• What additional resources can I expect from Bayer?

Event Flyer

RSVP by September 10 to jmcnamee@gatewayhemophilia.org or 314-482-5973

Sponsored by:

GHA will co-host a Women’s Retreat with Midwest Hemophilia Association, Nebraska Chapter of NHF, and Hemophilia of Iowa, for women 18 and older with a bleeding disorder, carriers, and caregivers of a person with a bleeding disorder. Attendees must be a member and live in GHA’s service area. Registration closes September 1, 2020. Contact info@GatewayHemophilia.org with any questions.

Click here to Register!

Sponsored by

Advance registration and payment is REQUIRED (Event sells out)

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

Register here!