Events

Learn effective grassroots advocacy techniques! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

RSVP for the training dinner info@gatewayhemophilia.org or (314) 482-5973. Event Flyer

Advocacy Training: Sharing Your Story

Teen Advocacy Training: The teens will learn about the importance of personal advocacy through a variety of situational discussions.

Red Tie Challenge

Join us and let our voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy. Registration deadline was January 25.

Sponsored by:

Would you Get Locked Up for a Great Cause?

Walk Team Captains or team members will be given a bail amount by a celebrity judge and locked up at Farrotto’s. They will have up to 1 1/2 hours to come up with their bail amount, which raises money for their Walk Team. They will have access to their cell phone and contact list. Drink specials and an appearance from Louie.

Don’t want to be locked up? Come and watch, Farrotto’s will donate 20% of their sales to Gateway Hemophilia Association that day.

Click here to sign up.

Questions call (314) 482-5973 or info@GatewayHemophilia.org

You’re invited to learn about flying drones and helicopters as a hobby or potential career. Watch the experts fly. Ask questions. Bring your own RC Machine to get one on on instruction or use a simulator to learn to fly.

Event Flyer

RSVP BY WEDNESDAY, March 5th to jmcnamee@gatewayhemophilia.org  or 314-482-5973.

This event is sponsored by:

in partnership with Gateway Hemophilia Association.

Bring this flyer or show the cashier an electronic version to the cashier when you place your order and Panera will donate a portion of your proceeds to Team Von Willies

Nick’s Blood Clotters is hosting a fundraiser for their Unite Walk team! Show your support by eating at Culver’s during the time listed above and 20% of the proceeds will be donated to Nick’s Blood Clotters and the Gateway Hemophilia Association! If you are unable to attend, consider making a donation to Nick’s Blood Clotters by clicking HERE.

To sign up for an appointment to donate blood contact Karen Dickinson, Mississippi Valley Regional Blood Center at kldickinso@mvrbc.orgor (314) 281-5613.

To sign up for an appointment to donate blood contact Karen Dickinson, Mississippi Valley Regional Blood Center at kldickinso@mvrbc.orgor (314) 281-5613.

Kendra Scott is hosting a Shopping Party to benefit GHA! Enjoy sips of wine, champagne, and sweet treats while you shop! 20% of all proceeds will benefit GHA’s Unite for Bleeding Disorders Walk/5K!

Not in St. Louis? You can make your purchase over the phone during the event and 20% will still go to GHA! Call Kendra Scott 314-266-7610

*online orders will not count towards the fundraiser, so be sure to call!

GHA will host a Women’s Retreat for women 18 and older that are caregivers of a person with a bleeding disorder or have a bleeding disorder themselves. The focus of the conference will be education, personal growth and networking. Sessions will focus on bleeding disorders, treatment options and most importantly relaxation!

Deadline to register is March 1, 2019. Click here to register!

To sign up for an appointment to donate blood contact Karen Dickinson, Mississippi Valley Regional Blood Center at kldickinso@mvrbc.orgor (314) 281-5613.

GHA members are invited to attend a membership meeting featuring a Gene Therapy Presentation by Christopher Walsh, MD, PhD. Lunch will be provided and complimentary golf will follow the presentation.

*This program is for consumers and caretakers of individuals with a bleeding disorder. Space is limited, golf will be distributed on a first come first serve basis. Attendees must attend the gene therapy presentation to receive complimentary golf.

RSVP by March 15th

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

Click here to register with HFA or for more information.

Click here for a map of Greensfelder Park

GHA’s Teen group and young adults will participate in an outdoor hike at Greensfelder park. This program is open for teens and young adults 16-25 with a bleeding disorder. They may also bring one person to hike with them.

Please wear proper clothes and shoes for hiking. Check the weather prior to the hike to prepare. Lunch, bottled water, and snacks provided. Questions contact Bridget at info@gatewayhemophilia.org or (314) 482-5973. RSVPs are required no later than 4/1.

Supported by the World Federation of Hemophilia (WFH), hemophilia awareness day was first established in 1989. The date of 17th April was chosen to honor Frank Schnabel the founder of WFH, whose birthday falls on the same date.

Click here for more information and events for World Hemophilia Day. 

Join us as we take a look back at the last 50 years and celebrate the history of GHA and bleeding disorders. Monuments will be lit in red for this event honoring World Hemophilia Day and GHA’s 50^th year!  The event includes a seated dinner, cash bar, and an awards presentation. We will honor members from the community and Dr. Bouhasin will be presented with a Lifetime Achievement Award for his service to the bleeding disorders community.Click here to register! Early registration is $25 per person, which will increase to $30 after March 15.

We are looking for volunteers for GHA’s Unite for Bleeding Disorders Walk and 5K on May 4, 2019!

Volunteer Opportunities:

Course Volunteer: volunteers will be on the 1 mile or 5K course to direct walkers and runners. Time 9:00 a.m. – 11:00 a.m.

Set Up Crew: Setting up tables, tents, and chairs at Cricket Field. Time 6:15 a.m. – 9:15 a.m.

Break Down Crew: Break down tents, tables, and chairs after the event is over. Time 11:30 a.m. – 12:00 p.m.

Registration Table: Hand out event t-shirts. Time 8:00 a.m. – 10:00 a.m.

If you have any questions or would like to volunteer contact: Jen at jmcnamee@gatewayhemophilia.org

Register Here!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. A 1 mile and 5K course are both offered. Chip timing available for the 5K at no additional charge.

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

Camper Packing List

Camp Flyer

2019  Camp Theme – Wild West

Click here to REGISTER – application deadline April 30

As an organization dedicated to the education and advocacy for our community, we decided 23 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

All proceeds from GHA’s Wine Tasting fundraising will benefit the educational scholarship fund for our members with a bleeding disorder who are furthering their education.

Click here to register!

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

SCHEDULE:

10:00 am…Registration & Putting Contest

11:00 am…Lunch by Pappy’s Smokehouse, Silent Auction & Driving Range

12:00 pm…Shotgun Start

5:00 pm..…Reception & Silent Auction

5:30 pm…..Dinner & Awards, Emcee TBD

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s Bleeding Disorders Conference in Anaheim, CA, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate October 3-5, 2019.

NHF’s Bleeding Disorders Conference Info

Click here for GHA’s grant application, which is due August 1, 2019.

Advance registration and payment is REQUIRED (Event sells out)

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

Register here!