Events

Feb 11

Winter Membership Meeting

Location: Dave and Buster's
13857 Riverport Dr, Maryland Heights, MO 63043
12:00 p.m. to 2:00 p.m.

The members of GHA are invited to gather for a membership update, education, networking, and fun, while developing community. This event is only for individuals affected by a bleeding disorder and their immediate family. The event also includes lunch and industry exhibits. RSVP by February 9, to Info@GatewayHemophilia.org

Mar 08-10

NHF’s Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care
  • Learn effective grassroots advocacy techniques

GHA’s scholarship deadline was January 6, 2023.

For more information and updates related to Washington Days 2023, visit NHF’s website

Mar 24-26

Men’s Retreat

Location: Margaritaville Lake Resort
494 Tan Tar A Dr., Osage Beach, MO 65065

This retreat is for men 21+ that live in GHA or Midwest Hemophilia Association’s service area. To attend, you must also

1) have a bleeding disorder;
2) or be a spouse of someone with a bleeding disorder; and/or
3) be a parent of someone with a bleeding disorder.

Click here to register, deadline is Friday, February 24. Click here for the Agenda.

Mar 31

GHA Scholarship Program

GHA offers educational scholarships to encourage post high-school education for students with a bleeding disorder living within the GHA service area. Scholarship recipients are selected on the basis of their potential to succeed, academic achievement, leadership, participation in school and community activities, honors, work experience, statement of educational and career goals, how having a bleeding disorder has affected personal and family circumstances. Applicants must either be entering or attending a community college, junior college, four-year college, university, or vocational school. The deadline for application is March 31, 2023. Applicants are notified of the committee’s scholarship decisions by June 1, 2023.

GHA’s 2023-2024 Scholarship Application

GHA’s 2023-2024 Scholarship Reapplication Form

For additional scholarships, not through GHA click here 

Apr 13-16

HFA Symposium

Location: Sea World Renaissance Hotel
6677 Sea Harbor Drive, Orlando, FL 32821

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support! GHA’s participant grant, was due January 15, 2023.

Click here to register with HFA or for more information.

 

 

Apr 17

World Hemophilia Day

Supported by the World Federation of Hemophilia (WFH), hemophilia awareness day was first established in 1989. The date of 17th April was chosen to honor Frank Schnabel the founder of WFH, whose birthday falls on the same date. This year the Planetarium will be lit up in red again in honor of World Hemophilia Day!

The theme of the event this year is “Access for All: Prevention of bleeds as the global standard of care”

Click here for more information and events for World Hemophilia Day. 

2010WHD_Logo_Eng      The St. Louis Wheel (@stlouiswheel) / Twitter

Apr 17

World Hemophilia Day Celebration

Location: Train Shed
201 S 18th St, St Louis, MO 63103
6:00 p.m.

Join us over dinner to celebrate World Hemophilia Day at the Train Shed. You can see the St. Louis Wheel lit up in red in honor of World Hemophilia Day. This educational program is sponsored by

**This event is for members of GHA with a bleeding disorder and their families. RSVP by April 10 to info@gatewayhemophilia.org

Apr 28-30

Adult Retreat

Location: Margaritaville, Lake Ozark MO
494 Tan Tar A Drive, Osage Beach, Missouri 65065

We are stronger together!

The Adult Retreat is for adults with a bleeding disorder ages 21+. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN! Check back for an agenda. Registration deadline is March 31, 2023. Register here!

May 10

Give STL Day

 

DONATE HERE

You Can Make a Difference!
Join the movement and make a gift to benefit our community.
Give STL Day is an annual event which raises money and awareness for nonprofits in the St. Louis region. Since its inception in 2014, Give STL Day has raised over $26.2 million.

May 18

Taste of Tequila, Splash of Charity

Location: Sunny's Cantina
6655 Manchester Ave., St. Louis, MO 63139
6:00 p.m. to 8:00 p.m.

GHA’s Annual Tequila and Margarita Tasting

All proceeds will benefit educational scholarships for our members with a bleeding disorder. 

Featuring:

Tequila Tastings from various tequila vendors

One Sunny’s Specialty Margarita or Sol Beer from Molson Coors

Dinner Buffet from Sunny’s Cantina

Silent Auction & Live Music from 2 Pedros

Tickets are $50 in advance, $60 day of the event Register Here!

*must be 21+ years of age, space is limited

Questions (314) 482-5973  info@gatewayhemophilia.org

Jun 07-09

Camp Notaclotamongus

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

2023 Camp Theme – Holidays

Application deadline is April 30

Jul 14-15

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road, Chesterfield, Missouri, 63017

As an organization dedicated to the education and advocacy for our community, we decided 27 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Registration deadline June 16, 2023.

Please contact info@gatewayhemophilia.org with any questions.

Jul 16

Volunteer Opportunity

Location: DoubleTree Chesterfield Hotel
16625 Swingley Ridge Rd., Chesterfield, MO 63017
7:00 a.m. to 11:30 a.m.

We are looking for volunteers for GHA’s Unite for Bleeding Disorders Walk and 5K!

Volunteer Opportunities:

Set Up Crew: Setting up tables, tents, chairs, and directional signs at the walk site. Time 7:00 a.m. – 8:30 a.m.

Course Volunteer: volunteers will be on the 1 mile or 5K course to direct walkers and runners. Time 8:30 a.m. – 10:30 a.m.

Break Down Crew: Break down tents, tables, and chairs after the event is over. Time 10:30 a.m. – 12:00 p.m.

SIGN UP HERE

If you have any questions, contact info@gatewayhemophilia.org

 

Jul 16

Unite for Bleeding Disorders Walk & 5K

Location: DoubleTree
16625 Swingley Ridge Rd, Chesterfield, MO 63017
9:30 a.m. (registration opens at 8:30 a.m.)

 

 

REGISTER YOUR TEAM HERE!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research.

Click here for the 2019 video!

Aug 17-19

NHF Bleeding Disorder Conference!

Location: Washington, D.C.

Every year NHF’s Bleeding Disorders Conference brings together thousands of families and passionate professionals for in-person education and networking. Click here to apply for GHA’s participant grant, which is due May 31, 2023.

NHF’s Bleeding Disorders Conference Info

 

Sep 11

Tee off 4 Hemophilia

Location: The Legends Country Club
625 The Legends Pkwy Eureka, MO 63025
12:00 p.m. Shotgun Start

The money raised at this tournament will be used to fund the programs and services provided throughout the year to people affected by bleeding disorders. GHA hosts educational conferences specific to bleeding disorders, funds research, supports advocacy, provides educational scholarships, provides emergency financial assistance, dental assistance, medic alerts, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

10:30 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start / 5:00 pm..…Reception, Silent Auction & Awards

Oct 13-15

FAB

Location: Margaritaville, Lake Ozark MO
494 Tan Tar A Drive, Osage Beach, Missouri 65065

Gateway Hemophilia Association will co-host a FAB (Females And Bleeding Disorders) conference with Midwest Hemophilia Association, Nebraska Chapter of NHF, and Hemophilia of Iowa, for women 18 and older with a bleeding disorder, carriers, spouses of a person with a bleeding disorder, and parents of a person with a bleeding disorder. Parents must live in the same household. Attendees must be a member and live in GHA’s service area. The registration deadline is September 9, 2023. Contact info@GatewayHemophilia.org with any questions.

“Check back in April for registration”

Sponsored by

Nov 04

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Theme: TBD, all rounds will be around our theme. Prize to best dressed table.

Register HERE!

Advance registration and payment is REQUIRED Deadline is November 1!

$200 per table of eight ($25/person, individual seats are available, 4 person minimum per table) 

Beer, soda, water and light snacks provided!

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973.

 

Dec 20

GHA Holiday Party

Location: The Magic House
516 S. Kirkwood Rd., St. Louis, MO 63122
6:00 PM to 8:00 PM

6:00 Welcome & Membership Meeting

6:30 Pictures with Santa

**Cookies and drinks provided**

RSVP Deadline  December 1 to  info@GatewayHemophilia.org