Events

Jan 30

Hemophilia B Community Event

2:00 p.m. to 6:00 p.m.

Click here for the event flyer!

Our B Community meetings are educational & fun! CLICK for our January flyers.

For Hemophilia B member in Illinois, Missouri, Minnesota, Iowa, Nebraska
Registration deadline: Jan 27
Early deadline to receive box and dinner reservation: Jan 19
Sponsored by CSL Behring
REGISTER HERE

Feb 07

Teen Meet Up

2:00 p.m.

This teen meet up event is for teens ages 13-18 with a bleeding disorder and their immediate family. During this interactive demonstration, Kitchen Kevin will show us how to make cinnamon rolls. You will receive a $10 gift card to help will supplies and the recipe after you register. You must register by February 3.

 

Sponsored by:

 

Feb 08

Understanding Accumulator Adjuster Programs

7:00 p.m.

We invite community advocates to join us as NHF Director of Payer Relations, Kollet Koulianos, explains this emerging insurance trend that has been negatively impacting patients. Under an Accumulator Adjuster Program (AAP), a pharmacy benefit manager accepts co-pay assistance for out-of-pocket costs associated with a prescribed drug but then doesn’t credit that amount toward the patient’s overall deductible.

Kollet will break down exactly how AAPs work, why they are so harmful to patients with bleeding disorders, and how NHF has been advocating on your behalf.

Stick around for a state update from Gateway Hemophilia Association and Midwest Hemophilia Association’s Executive Directors, and learn how you can support our advocacy efforts.  Click here to register!

In collaboration with

 

Feb 09

Taco Tuesday Cooking Class

6:00 p.m.

Join GHA and NEHA for a Taco Tuesday cooking class!

Register in advance for this meeting by clicking here! Registration deadline February 1st. After registering, you will receive a confirmation email containing information about joining the meeting.

GHA and the New England Hemophilia Association (NEHA) are partnering for a fun event! You will meet community members from across the country and have fun making Tacos. Each household registered receives a gift card to help purchase the supplies. This interactive event is generously supported by Octapharma.

Sponsored by:

Mar 01-05

NHF’s Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

You can Register with NHF

Mar 10

Advocacy Day Training

Location: Zoom Webinar
7:00 p.m.

Learn effective grassroots advocacy techniques and how to do it virtually! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

Advance registration is required. If you have any questions contact jmcnamee@gatewayhemophilia.org or (314) 482-5973.

Advocacy Training: Zoom techniques, Sharing Your Story & Talking Points for Advocacy Day

Mar 11

Missouri Advocacy Day

Location: Virtual

Join us and let our voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy. Registration deadline is February 25. Register here. MO State Capitol

Sponsored by:

   

Apr 03

Winter Membership Meeting

Location: TBD

Check back for more information.

Apr 16-18

Adult Retreat

We are stronger together!

Register here!

The Adult Retreat is for adults with a bleeding disorder ages 20+. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN!

Registration deadline March 26.

GHA Skyline g

 

 

Jun 02-05

Camp Notaclotamongus

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025
12:00 p.m.

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

Camper Packing List

Camp Goals & Schedule

2021 Camp Theme – Pirates

Application deadline April 30

 

Jul 09-11

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road, Chesterfield, Missouri, 63017

As an organization dedicated to the education and advocacy for our community, we decided 25 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

The deadline to register for the in person meeting is June 20, 2021.

Please contact info@gatewayhemophilia.org with any questions.

Jul 11

Unite for Bleeding Disorders Walk

Location: DoubleTree
16625 Swingley Ridge Rd, Chesterfield, MO 63017
9:30 a.m. (registration opens at 8:30 a.m.)

 

 

Registration coming soon!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research.

Click here for the 2019 video!

Aug 19

Wine Tasting Fundraiser

6:00 p.m. to 8:00 p.m.

tasting-wine

(pending local and state guidelines)

All proceeds from GHA’s Wine Tasting fundraising will benefit the educational scholarship fund for our members with a bleeding disorder who are furthering their education.

Registration coming soon!

6:00 pm to 8:00 pm – complimentary wine and beer tasting. 
Samplings of appetizers. Tickets are $30 in advance, $35 day of event.

Aug 26-28

NHF Virtual Bleeding Disorders Conference!

Every year NHF’s Bleeding Disorders Conference brings together thousands of families and passionate professionals for in-person education and networking.

 

 

NHF’s Bleeding Disorders Conference Info

Sep 13

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:30 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

SCHEDULE:

10:30 am…Registration & Putting Contest

11:00 am…Lunch, Silent Auction & Driving Range

12:00 pm…Shotgun Start

5:00 pm..…Reception, Silent Auction & Awards

Oct 08-10

Regional Women’s Retreat

Location: Margaritaville
494 Tan Tara Estate Drive, Osage Beach, MO 65065

GHA will co-host a Women’s Retreat with Midwest Hemophilia Association, Nebraska Chapter of NHF, and Hemophilia of Iowa, for women 18 and older with a bleeding disorder, carriers, and caregivers of a person with a bleeding disorder. Attendees must be a member and live in GHA’s service area. Registration closes September 1, 2021. Contact info@GatewayHemophilia.org with any questions.

Click here to Register!

Sponsored by

Oct 21-24

HFA Symposium

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support!

Nov 06

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED 

$150 per table of six ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!