Events

Description: Professional hockey coach David Quinn offers advice on the challenges that young people face when changing up their game plan due to a bleeding disorder.

Join us for a screening of an original video series inspired by and made for the hemophilia A community, followed by an open discussion about the everyday struggles of living with hemophilia A. Are you up for the challenge? Event flyer

Sponsored by:

Register in advance for this meeting here:

After registering, you will receive a confirmation email containing information about joining the meeting.

Advance registration and payment is REQUIRED 

$150 per table of six ($25/person, individual seats are available)

 Beer, soda and snacks provided   

This event is sold out! Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

This program will provide you with information about health insurance, including an overview of insurance options, transitions that impact coverage, and insurance denials of coverage.

Register in advance for this meeting by clicking here.

After registering, you will receive a confirmation email containing information about joining the meeting.

Speaker: Jana Kinloch, Patient Access Manager

Sponsored by:

This is a Jeopardy challenge between the midwest chapters, GHA, Midwest Hemophilia Association, and Bleeding Disorders Alliance Illinois.

Click here to register in advance for this meeting!

GHA Gives Back!

Join us for GHA’s annual day to ‘give back”

Volunteers will be helping to sort, process and pack the thousands of donations from the Scouting For Food event that day. Lunch will be provided. Event Flyer!

RSVP by November 18th to 314-482-5973 or jmcnamee@gatewayhemophilia.org

Join GHA and NEHA for an ugly sweater cooking class!

Sponsored by:

GHA is looking for volunteers to collect the admission fee from each car at the end of the Winter Wonderland light show. If you are available to volunteer please email Info@GatewayHemophilia.org.

There are two shifts, 5:00 p.m. – 7:30 p.m. and 7:30 – 10:00 p.m. We need a minimum of 6 volunteers, children under 16 are not permitted to volunteer. All volunteers will be required to wear face coverings at all times. Thank you in advance to our volunteers!

See below for the 2021 events!

We are stronger together!

Registration will open after January 1, 2021

The Adult Retreat is for adults with a bleeding disorder ages 20+. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN!

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

Camper Packing List

Camp Goals & Schedule

2021 Camp Theme – Pirates

Application deadline April 30

As an organization dedicated to the education and advocacy for our community, we decided 25 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

The deadline to register for the in person meeting is June 20, 2021.

Please contact info@gatewayhemophilia.org with any questions.

GHA will co-host a Women’s Retreat with Midwest Hemophilia Association, Nebraska Chapter of NHF, and Hemophilia of Iowa, for women 18 and older with a bleeding disorder, carriers, and caregivers of a person with a bleeding disorder. Attendees must be a member and live in GHA’s service area. Registration closes September 1, 2021. Contact info@GatewayHemophilia.org with any questions.

Click here to Register!

Sponsored by

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support!