Events

Aug 24-29

HFA Symposium

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support!

Click here to register with HFA or for more information.

 

Sep 14

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:00 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

SCHEDULE:

10:00 am…Registration & Putting Contest

11:00 am…Lunch, Silent Auction & Driving Range

12:00 pm…Shotgun Start

5:00 pm..…Reception & Silent Auction

5:30 pm…..Dinner & Awards

Sep 16

Meet Jivi

Location: Zoom Webinar
Or Telephone: (646) 558 8656 Webinar ID: 828 1657 1800
6:00 p.m.

Speaker: Jessica Lovercamp, RN

This Jivi Patient Program will review:

  • What is Jivi?
  • What is the safety and bleed protection information for Jivi?
  • What additional resources can I expect from Bayer?

Event Flyer

RSVP by September 10 to jmcnamee@gatewayhemophilia.org or 314-482-5973

Sponsored by:

Oct 04

Wine Tasting Fundraiser

Location: Farotto's Pasta & Pizzeria
9525 Manchester Road Rock Hill, MO 63119
2:00 PM to 4:00 PM

tasting-wine

(pending local and state guidelines)

All proceeds from GHA’s Wine Tasting fundraising will benefit the educational scholarship fund for our members with a bleeding disorder who are furthering their education.

Click here to register!

2:00 pm to 4:00 pm – complimentary wine and beer tasting. 
Samplings of Farotto’s appetizers. Tickets are $30 in advance, $35 day of event.

Oct 24

GHA Fall Membership Meeting

Location: Stuckmeyers Farm
249 Schneider Drive Fenton, MO 63026
10:00 a.m. to 12:00 p.m.

The members of GHA are invited to gather for a membership update, education, networking, and fun, while developing community. This event is only for individuals affected by a bleeding disorder and their immediate family. Event also includes snacks, a hayride, and a small pumpkin. 

 

Exhibit Booths 10:00     Membership Meeting 11:00     Lunch 11:30

Event Flyer

RSVP by October 16 to (314) 482-5973 or to jmcnamee@gatewayhemophilia.org

 

 

 

 

Oct 28

Save the date, please check back for more details.

 

Sponsored by:

Nov 14

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED (Event sells out)

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

Register here!

Dec 31

2021

See below for the 2021 events!

Mar 03-05

NHF’s Washington Days

Location: Hyatt Regency at Capitol Hill
400 New Jersey Ave NW, Washington DC 20001.

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

GHA’s scholarship is due January 1, 2021. You can Register with NHF

Apr 08-11

HFA Symposium

Location: TBD

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support!

Amazon.com: 126-1" Save The Date Stickers, Save The Date Envelope ...

Jun 02-05

Camp Notaclotamongus

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025
12:00 p.m.

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

Camper Packing List

Camp Goals & Schedule

2021 Camp Theme – Pirates

Application deadline April 30