Jul 10-11

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road, Chesterfield, Missouri, 63017

As an organization dedicated to the education and advocacy for our community, we decided 24 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Click here to register! Deadline to register for an in person meeting is July 1.

Please contact with any questions. 2020 Theme: You Always Need to Factor in Home

Jul 11

Sanofi Genzyme Virtual Exhibit

8:30 a.m. to 10:00 a.m.

Dial in (312) 626-6799  Meeting ID: 930 3121 6143 Password: Sanofi

John Martinez M.Ed, BSN, RN, Community Relations & Education (CoRe) Manager

IL, KY Rare Blood Disorders

(617) 301-2485

Vicki Oberkrom, Community Relations Manager

MO and IA Rare Blood Disorders

Mobile: 660-281-9518

Jul 11

Insurance Basics, Coverage, and Assistance

2:00 p.m. to 2:50 p.m.

Speaker: Kimberly Ramseur, Senior Manager for Policy Advocacy and Government Education

Program will cover Insurance basics, coverage options and assistance programs.

Register here in advance for this webinar. After registering, you will receive a confirmation email containing information about joining the webinar.

Sponsored by:

Jul 11

Opening Session & Clarity in the Midst of Uncertainty

10:00 a.m. to 11:30 a.m.
10:00 -10:20 Welcome from Executive Director, Bridget Tyrey & Board President Chris Schneider.
10:20 – 11:30 “Clarity in the Midst of Uncertainty” Speaker: Jeff Koziatek, CEO and President of Core Authenticity, click here for his website.
“I feel… frustrated, burnt out, overwhelmed, lost, anxious, and nervous.”
It is difficult to make confident decisions, work as a team, gather self-motivation, or empower others when we are rocked with these emotions. YET – we still need to get out of bed, the work must get done, and goals must be reached. To confidently step into the unknown, we need:
 A compass that points to true north regardless of our circumstances
 A mindset for resilience in adversity
 A team for accountability, support, and encouragement toward success.
In this engaging, fun, and thought provoking presentation, Jeff Koziatek will help you reach a higher level of understanding about yourself and regain clarity. Come to get equipped, encouraged, and inspired!

You are invited to a Zoom webinar.
When: Jul 11, 2020 10:00 AM Central Time (US and Canada)
Topic: Opening Session & Clarity in the Midst of Uncertainty

Please click here join the webinar:
Telephone: +1 646 558 8656 Webinar ID: 893 3220 9322

Sponsored by:

Jul 12

Volunteer Opportunity

Location: DoubleTree Chesterfield Hotel
16625 Swingley Ridge Rd., Chesterfield, MO 63017
6:00 a.m. to 12:00 p.m.

We are looking for volunteers for GHA’s Unite for Bleeding Disorders Walk and 5K on July 12, 2020 at the DoubleTree Chesterfield Hotel!

Volunteer Opportunities:

Course Volunteer: volunteers will be on the 1 mile or 5K course to direct walkers and runners. Time 8:45 a.m. – 10:30 a.m.

Set Up Crew: Setting up tables, tents, and chairs at the walk site. Time 6:15 a.m. – 8:15 a.m.

Break Down Crew: Break down tents, tables, and chairs after the event is over. Time 10:30 a.m. – 12:00 p.m.

Registration Table: Hand out event t-shirts. Time 8:00 a.m. – 10:00 a.m.


If you have any questions, contact Jen at


Jul 12

Unite for Bleeding Disorders Walk

Location: DoubleTree
16625 Swingley Ridge Rd, Chesterfield, MO 63017
9:30 a.m. (registration opens at 8:30 a.m.)



Register Here!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research.

Click here for the 2019 video!

Aug 01-08

NHF’s 72nd Virtual Bleeding Disorders Conference!

Every year NHF’s Bleeding Disorders Conference brings together thousands of families and passionate professionals for in-person education and networking. This year, in order to keep our community safe and help prevent the spread of COVID-19 we have made the decision to host the 2020 Bleeding Disorders Conference virtually.


NHF’s Bleeding Disorders Conference Info

Aug 14-16

Adult Retreat

We are stronger together!

Click here to register

DEADLINE July 15, 2020

The Adult Retreat is for adults with a bleeding disorder ages 20+. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN!

GHA Skyline g



Aug 24-29

HFA Symposium

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support!

Click here to register with HFA or for more information.


Sep 14

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:00 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends


10:00 am…Registration & Putting Contest

11:00 am…Lunch, Silent Auction & Driving Range

12:00 pm…Shotgun Start

5:00 pm..…Reception & Silent Auction

5:30 pm…..Dinner & Awards

Sep 16

Meet Jivi

Location: The Old Spaghetti Factory
17384 Chesterfield Airport Rd., Chesterfield, MO 63005
6:00 p.m.

Speaker: Jessica Lovercamp, RN

This Jivi Patient Program will review:

  • What is Jivi?
  • What is the safety and bleed protection information for Jivi?
  • What additional resources can I expect from Bayer?

Event Flyer

RSVP by September 10 to or 314-482-5973

Sponsored by:

Oct 04

Wine Tasting Fundraiser

Location: Farotto's Pasta & Pizzeria
9525 Manchester Road Rock Hill, MO 63119
2:00 PM to 4:00 PM


(pending local and state guidelines)

All proceeds from GHA’s Wine Tasting fundraising will benefit the educational scholarship fund for our members with a bleeding disorder who are furthering their education.

Click here to register!

2:00 pm to 4:00 pm – complimentary wine and beer tasting. 
Samplings of Farotto’s appetizers. Tickets are $30 in advance, $35 day of event.

Oct 16-18

Regional Women’s Retreat

Location: Margaritaville
494 Tan Tara Estate Drive, Osage Beach, MO 65065

GHA will co-host a Women’s Retreat with Midwest Hemophilia Association, Nebraska Chapter of NHF, and Hemophilia of Iowa, for women 18 and older with a bleeding disorder, carriers, and caregivers of a person with a bleeding disorder. Attendees must be a member and live in GHA’s service area. Registration closes September 1, 2020. Contact with any questions.

Click here to Register!

Sponsored by

Oct 28

Save the date, please check back for more details.


Sponsored by:

Nov 14

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED (Event sells out)

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact or call (314) 482-5973. Event Flyer!

Register here!

Dec 31


See below for the 2021 events!

Mar 03-05

NHF’s Washington Days

Location: Hyatt Regency at Capitol Hill
400 New Jersey Ave NW, Washington DC 20001.

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

GHA’s scholarship is due January 1, 2021. You can Register with NHF

Apr 08-11

HFA Symposium

Location: TBD

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support! 126-1" Save The Date Stickers, Save The Date Envelope ...

Jun 02-05

Camp Notaclotamongus

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025
12:00 p.m.

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

Camper Packing List

Camp Goals & Schedule

2021 Camp Theme – Pirates

Application deadline April 30