Events

Nov 09

Challenge Accepted

6:00 p.m.

Description: Professional hockey coach David Quinn offers advice on the challenges that young people face when changing up their game plan due to a bleeding disorder.

Join us for a screening of an original video series inspired by and made for the hemophilia A community, followed by an open discussion about the everyday struggles of living with hemophilia A. Are you up for the challenge? Event flyer

Sponsored by:

Register in advance for this meeting here:

After registering, you will receive a confirmation email containing information about joining the meeting.

Nov 14

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED 

$150 per table of six ($25/person, individual seats are available)

 Beer, soda and snacks provided   

This event is sold out! Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

Nov 17

Health Insurance Road Map

6:00 p.m.

This program will provide you with information about health insurance, including an overview of insurance options, transitions that impact coverage, and insurance denials of coverage.

Register in advance for this meeting by clicking here.

After registering, you will receive a confirmation email containing information about joining the meeting.

Speaker: Jana Kinloch, Patient Access Manager

Sponsored by:

Nov 19

Midwest Jeopardy Challenge

6:30 p.m.

This is a Jeopardy challenge between the midwest chapters, GHA, Midwest Hemophilia Association, and Bleeding Disorders Alliance Illinois.

Click here to register in advance for this meeting!

Nov 21

‘Tis The Season To Give Back’

Location: Arnold Food Pantry
2024 Key West Drive, Arnold, MO 63010
8:30 a.m. to 10:30 a.m.

GHA Gives Back!

Join us for GHA’s annual day to ‘give back”

Volunteers will be helping to sort, process and pack the thousands of donations from the Scouting For Food event that day. Lunch will be provided. Event Flyer!

RSVP by November 18th to 314-482-5973 or jmcnamee@gatewayhemophilia.org

Dec 06

Ugly Sweater Cooking Class

3:00 central

Join GHA and NEHA for an ugly sweater cooking class!

Register in advance for this meeting here!
After registering, you will receive a confirmation email containing information about joining the meeting.

Sponsored by:

Dec 22

Tilles Park Winter Wonderland

Location: Tilles Park
9551 Litzinger Road St. Louis, MO 63124.
5:00 p.m. to 10:00 p.m.

GHA is looking for volunteers to collect the admission fee from each car at the end of the Winter Wonderland light show. If you are available to volunteer please email Info@GatewayHemophilia.org.

There are two shifts, 5:00 p.m. – 7:30 p.m. and 7:30 – 10:00 p.m. We need a minimum of 6 volunteers, children under 16 are not permitted to volunteer. All volunteers will be required to wear face coverings at all times. Thank you in advance to our volunteers!

Dec 31

2021

See below for the 2021 events!

Mar 03-05

NHF’s Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

You can Register with NHF

Apr 16-18

Adult Retreat

We are stronger together!

Registration will open after January 1, 2021

The Adult Retreat is for adults with a bleeding disorder ages 20+. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN!

GHA Skyline g

 

 

Jun 02-05

Camp Notaclotamongus

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025
12:00 p.m.

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

Camper Packing List

Camp Goals & Schedule

2021 Camp Theme – Pirates

Application deadline April 30

 

Jul 09-11

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road, Chesterfield, Missouri, 63017

As an organization dedicated to the education and advocacy for our community, we decided 25 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

The deadline to register for the in person meeting is June 20, 2021.

Please contact info@gatewayhemophilia.org with any questions.

Oct 08-10

Regional Women’s Retreat

Location: Margaritaville
494 Tan Tara Estate Drive, Osage Beach, MO 65065

GHA will co-host a Women’s Retreat with Midwest Hemophilia Association, Nebraska Chapter of NHF, and Hemophilia of Iowa, for women 18 and older with a bleeding disorder, carriers, and caregivers of a person with a bleeding disorder. Attendees must be a member and live in GHA’s service area. Registration closes September 1, 2021. Contact info@GatewayHemophilia.org with any questions.

Click here to Register!

Sponsored by

Oct 21-24

HFA Symposium

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support!