GHA members are invited to gather for a membership meeting. Space is limited, bowling will be distributed on a first come first serve basis. Attendees must attend the membership meeting to receive two hours of complimentary bowling, shoe rental, and light refreshments. This is for families affected by a bleeding disorder. 

Event Flyer!

RSVP By January 17th to  jmcnamee@gatewayhemophilia.org or (314) 482-5973

Title Sponsor:

Description: It can be a challenge to feel “empowered” when we experience new or challenging situations. Luckily, empowerment is something we can learn, practice, and embrace. Together, we will discuss ways of becoming more empowered such as acknowledging strengths, embracing individuality, creating safe environments, enhancing confidence, and establishing supportive partnerships.

This program is for individuals with a bleeding disorder and their immediate famliy.

RSVP by February 14th to (314) 482-5973 or jmcnamee@gatewayhemophilia.org

Event Flyer

Sponsored by:

Description: A one-hour presentation with Q&A focused on what causes a genetic disorder, how investigational gene therapies are being developed and researched, and what the clinical trials are aiming to understand. Many gene therapies are being studied in people living with a range of conditions, including hemophilia A and B, to determine if they are safe and effective. No gene therapies for hemophilia have been approved for use. Join us and others with hemophilia at this engaging session as we look into the science of gene therapy research and the biology behind it.

Speaker: Dr. Sidonio

This program is for individuals with a bleeding disorder and their immediate famliy.

RSVP by February 17th to (314) 482-5973 or jmcnamee@gatewayhemophilia.org

Event Flyer

Sponsored by:

Learn effective grassroots advocacy techniques! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

RSVP for the training dinner jmcnamee@gatewayhemophilia.org or (314) 482-5973. Event Flyer

Advocacy Training: Sharing Your Story & Talking Points for Advocacy Day

Red Tie Challenge

Join us and let our voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy. Registration deadline is February 3. Click here to register.

Sponsored by:

For Men 21 and older who are affected by a bleeding disorder

What: Join us for a bourbon tasting and a brief overview of cigars.

GHA will co-host a Women’s Retreat with Midwest Hemophilia Association, Nebraska Chapter of NHF, and Hemophilia of Iowa, for women 18 and older with a bleeding disorder, carriers, and caregivers of a person with a bleeding disorder. Attendees must be a member and live in GHA’s service area.

Click here to register! Registration deadline is February 15, 2020.

Sponsored by

Application Deadline was December 1, 2019

GHA is looking for a prominent leader that will be willing to contribute to the design and creation of teen programs in the future. The teen must live within the GHA service area, be ages 14-20 years old, and able to attend the YETI conference April 2- 5, 2020. YETI will be held at Camp Collins.

Hemophilia Foundation of Oregon (HFO) created the YETI conference to help bleeding disorder organizations work to transition teens from living in their parents’ home to successfully living a life on their own after high school.

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

Click here for GHA’s scholarship application, which is due January 20, 2020.

Click here to register with HFA or for more information.

We are looking for volunteers for GHA’s Unite for Bleeding Disorders Walk and 5K on May 2, 2020 in Forest Park!

Volunteer Opportunities:

Course Volunteer: volunteers will be on the 1 mile or 5K course to direct walkers and runners. Time 8:45 a.m. – 10:30 a.m.

Set Up Crew: Setting up tables, tents, and chairs at the walk site. Time 6:15 a.m. – 8:15 a.m.

Break Down Crew: Break down tents, tables, and chairs after the event is over. Time 10:30 a.m. – 12:00 p.m.

Registration Table: Hand out event t-shirts. Time 8:00 a.m. – 10:00 a.m.

SIGN UP HERE

If you have any questions, contact Jen at jmcnamee@gatewayhemophilia.org

Register Here!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. A 1 mile and 5K course are both offered. Chip timing available for the 5K at no additional charge.

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

Camper Packing List

Camp Flyer

2020 Camp Theme – Pirates

Application deadline April 30

As an organization dedicated to the education and advocacy for our community, we decided 24 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Please contact info@gatewayhemophilia.org with any questions.

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s Bleeding Disorders Conference in Atlanta, GA, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate August 6-8, 2020.

Click Here for GHA’s Scholarship application, which is due May 1, 2020.

NHF’s Bleeding Disorders Conference Info

We are stronger together!

Click here to register

DEADLINE July 15, 2020

The Adult Retreat is for adults with a bleeding disorder ages 20+. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN!

All proceeds from GHA’s Wine Tasting fundraising will benefit the educational scholarship fund for our members with a bleeding disorder who are furthering their education.

Click here to register!

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

SCHEDULE:

10:00 am…Registration & Putting Contest

11:00 am…Lunch, Silent Auction & Driving Range

12:00 pm…Shotgun Start

5:00 pm..…Reception & Silent Auction

5:30 pm…..Dinner & Awards

Advance registration and payment is REQUIRED (Event sells out)

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

Register here!