Events

This program will provide you with the information to help make informed decisions about your health insurance. The program includes an overview of insurance options, information to help you navigate transitions that impact coverage, and the tools to help respond to insurance denials of coverage.

Event Flyer

RSVP to jmcnamee@gatewayhemophilia.org

Sponsored by:

Advance registration and payment is REQUIRED (Event sells out)

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

Register here!

This program offers an overview of coping with chronic illness, communicating with the health care team and others regarding hemophilia, financial considerations of health care through life stages, and the importance of staying physically active with appropriate activities.

RSVP by 11/5 to 636-675-4911 or jmcnamee@gatewayhemophilia.org

Click HERE for an event flyer!

Sponsored by:

This conference is an opportunity for women who have been diagnosed with hemophilia A or B, or carriers who are symptomatic.

The Hemophilia Foundation of Michigan (HFM) with financial support provided by Bioverativ, A Sanofi Company, and the Indiana Hemophilia and Thrombosis Center, Inc. (IHTC) will host this national conference.

Women who are eligible to join us at this inaugural conference will experience an amazing weekend learning from health care experts, and have opportunities to connect with other attendees who each bring their own unique wisdom and experience of living with hemophilia.

All interested participants are asked to APPLY for admittance to this conference starting August 21, 2018. There is availability for approximately 110 women and girls age 16 and older across the United States, diagnosed with mild, moderate or severe hemophilia A or B, or those who are symptomatic carriers for hemophilia A or B, to attend.

There is no charge for this weekend; transportation costs, hotel, and meals will be provided.

Questions? Please contact Patrice Thomas, HFM Program Services Director

734-544-0015, pthomas@hfmich.org

Transitions can be difficult. This program helps families manage transitions; teach their children to understand bleeds, factor, and regimen; and foster greater independence as they grow.

RSVP by 11/5 to 636-675-4911 or jmcnamee@gatewayhemophilia.org

Click HERE for an event flyer!

Sponsored by:

Event Flyer

RSVP Deadline 12-10-18 to  jmcnamee@gatewayhemophia.org or

(314) 482-5973

Check out our events for 2019 below!

Application Deadline: November 10, 2018

GHA is looking for a prominent leader that will be willing to contribute to the design and creation of teen programs in the future. The teen must live within the GHA service area, be ages 14-20 years old, and able to attend the YETI conference February 28- March 3, 2019. YETI will be held at Camp Collins.

Hemophilia Foundation of Oregon (HFO) created the YETI conference to help bleeding disorder organizations work to transition teens from living in their parents’ home to successfully living a life on their own after high school.

Teens must arrive in Portland by 3 p.m. on the 23rd and cannot depart from Portland until after 1 p.m. on the 3rd. The teen will travel with either a staff member or volunteer from GHA round-trip, no one under 18 should be flying alone to and from YETI. Click here for the application.

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

Click here to register with HFA or for more information.

Registration will open in December!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. A 1 mile and 5K course are both offered. Chip timing available for the 5K at no additional charge.

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.Camper Packing List.

2019  Camp Theme – Wild West

As an organization dedicated to the education and advocacy for our community, we decided 23 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.