Sep 28

von Willebrand ID – VONVENDI

Location: Zoom Webinar
6:30 p.m. to 7:30 p.m.

Topic Description: The vWD program provides the opportunity for members to hear stories, receive information, and connect with other
members of the community.

Speakers: Leslie H. & April Littrell, RN more info

Click here to join the meeting

Or iPhone one-tap :
US: +16465588656,,87064063960# or +13017158592,,87064063960#

Webinar ID: 870 6406 3960

Sponsored by:

Oct 22

Gene Therapy Learning Academy

6:00 p.m.

Description: Gene therapy has been explored as a potential treatment approach for well over 50 years.  This talk will provide a general overview of the following questions: What causes genetic conditions? What are the different types of gene therapies being researched? What are gene therapy trials trying to figure out?

Click here to join the webinar
Or iPhone one-tap :
US: +13126266799,,81738617732# or +16465588656,,81738617732#

Sponsored by:

Oct 24

GHA Fall Membership Meeting

Location: Stuckmeyers Farm
249 Schneider Drive Fenton, MO 63026
10:00 a.m. to 12:00 p.m.

The members of GHA are invited to gather for a membership update, education, networking, and fun, while developing community. This event is only for individuals affected by a bleeding disorder and their immediate family. Event also includes snacks, a hayride, and a small pumpkin. 


Exhibit Booths 10:00     Membership Meeting 11:00     Lunch 11:30

Event Flyer

RSVP by October 16 to (314) 482-5973 or to





Nov 14

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED (Event sells out)

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact or call (314) 482-5973. Event Flyer!

Register here!

Dec 31


See below for the 2021 events!

Mar 03-05

NHF’s Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

You can Register with NHF

Apr 16-18

Adult Retreat

We are stronger together!

Registration will open after January 1, 2021

The Adult Retreat is for adults with a bleeding disorder ages 20+. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN!

GHA Skyline g



Jun 02-05

Camp Notaclotamongus

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025
12:00 p.m.

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

Camper Packing List

Camp Goals & Schedule

2021 Camp Theme – Pirates

Application deadline April 30


Jul 09-11

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road, Chesterfield, Missouri, 63017

As an organization dedicated to the education and advocacy for our community, we decided 25 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

The deadline to register for the in person meeting is June 20, 2021.

Please contact with any questions.

Oct 21-24

HFA Symposium

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support!