Events

Feb 20

Gene Therapy Research: Understanding the Science

Location: Pan D'Olive
1603 McCausland Ave., St. Louis, MO 63117
6:00 p.m.

Description: Gene therapy has been explored as a potential treatment approach for well over 50 years. Join us to learn about the ongoing research-it’s science in progress.

This talk will provide a general overview of the following topics:

  • What causes genetic conditions?
  • What are the different types of gene therapies being researched?
  • How is gene therapy supposed to work and what is the research trying to figure out?

Speaker: Dr. Robert Sidonio

This program is for individuals with a bleeding disorder and their immediate famliy.

RSVP by February 18th to (314) 482-5973 or jmcnamee@gatewayhemophilia.org

Event Flyer

Sponsored by:

 

Feb 21-24

Working Women’s Survival Show

Location: St. Charles Convention Center
1 Convention Center Plz, St Charles, MO 63303

GHA will be exhibiting and bringing awareness to bleeding disorders at this year’s

The Show features the latest and greatest products and services from nearly 400 exhibitors that arrive in St. Louis from all over the country. This is not a GHA event, for more information click here.

Feb 25

Support Team G-Rex!

Location: 3 Margaritas
69 Fenton Plaza, Fenton, MO 63026
4:00 p.m. to 9:00 p.m.

Team G-Rex is hosting a fundraiser for their Unite Walk team! Show your support by eating at 3 Margaritas at the time listed above and 20% of the proceeds will be donated to Team G-Rex and the Gateway Hemophilia Association! If you are unable to attend, you can still donate to Team G-Rex by clicking HERE!

When you purchase your meal mention Gateway Hemophilia Association. Click HERE to RSVP by February 22nd.

Feb 26-28

NHF’s Washington Days

Location: Hyatt Regency at Capitol Hill
400 New Jersey Ave NW, Washington DC 20001.

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

GHA’s scholarship was due January 1, 2020. You can still Register with NHF

Mar 04

Advocacy Training Dinner

Location: Capitol Plaza Hotel
415 W. McCarty Street Jefferson City, MO 65101
6:30 p.m.

Learn effective grassroots advocacy techniques! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

RSVP for the training dinner jmcnamee@gatewayhemophilia.org or (314) 482-5973. Event Flyer

Advocacy Training: Sharing Your Story & Talking Points for Advocacy Day

Red Tie Challenge

Mar 05

Missouri Advocacy Day

Location: Missouri State Capitol
201 W Capitol Ave, Jefferson City, MO 65101
8:30 a.m.

Join us and let our voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy. Registration deadline was February 3.

MO State Capitol

Sponsored by:

   

Mar 07

Men’s Group

Location: 66 Cigar
3860 S Lindbergh Blvd #111, St. Louis, MO 63127
6:30 p.m. to 8:30 p.m.

For Men 21 and older who are affected by a bleeding disorder

What: Join us for a bourbon tasting and a brief overview of cigars.

RSVP by March 2nd to jmcnamee@gatewayhemophilia.org or 314-482-5973

Mar 19

A Comprehensive Approach to Hemophilia Care

Location: 17th Street Barbecue
32 N 17th St, Murphysboro, IL 62966
6:00 p.m.

Speaker: Dr. Michael Tarantino, Chief Executive Officer and Chief Medical Officer of the Bleeding and Clotting Disorders Institute (BCDI)

Description: Dr. Tarantino will discuss Comprehensive Care for persons with bleeding disorders. He will explain how this model of care improves overall health and quality of life.

This is an educational program for individuals with a bleeding disorder and their immediate families.

Event Flyer

RSVP by March 9th to info@gatewayhemophilia.org or 314-482-5973

Presented in partnership with:

              

Mar 20-22

Regional Women’s Retreat

Location: Honey Creek Resort
12633 Resort Drive, Moravia, IA. 52571

GHA will co-host a Women’s Retreat with Midwest Hemophilia Association, Nebraska Chapter of NHF, and Hemophilia of Iowa, for women 18 and older with a bleeding disorder, carriers, and caregivers of a person with a bleeding disorder. Attendees must be a member and live in GHA’s service area.

Click here to register! Registration deadline is February 15, 2020.

Sponsored by

Mar 29

Family Day Out

Location: TopGolf
16851 N. Outer 40 Rd., Chesterfield, MO 63005
1:00 PM to 3:30 PM

Who: Patients with bleeding disorders and their immediate family

What: Join us for lunch, and educational presentation, golf clinic, and open golfing

Speaker: Perry Parker, Hemophilia A patient, PGA Pro Golfer, and CSL Gettin’ in the Game Athlete

Topic: Believing in yourself and the importance of staying active with a bleeding disorder

Event Flyer

RSVP by March 25th to jmcnamee@gatewayhemophilia.org or (314) 482-5973

Sponsored by:

Mar 31

Support The A Team

Location: Onesto Pizza & Trattoria
5401 Finkman St, St. Louis, MO 63109
4:30 p.m. - 7:30 and 7:30 - 9:30 p.m.

The A Team is hosting a fundraiser for their Unite Walk team! Show your support by eating at Onesto and 10% of the proceeds will be donated to The Gateway Hemophilia Association! If you are unable to attend, you can still donate to The A Team by clicking HERE!

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Apr 02-05

Youth Effectively Transitioning to Independence

Location: Camp Collins
3001 SE Oxbow Pkwy, Gresham, OR 97080

 

Application Deadline was December 1, 2019

GHA is looking for a prominent leader that will be willing to contribute to the design and creation of teen programs in the future. The teen must live within the GHA service area, be ages 14-20 years old, and able to attend the YETI conference April 2- 5, 2020. YETI will be held at Camp Collins.

Hemophilia Foundation of Oregon (HFO) created the YETI conference to help bleeding disorder organizations work to transition teens from living in their parents’ home to successfully living a life on their own after high school.

Apr 03

Columbia, MO

vWD Talk

Apr 04

Jail or Bail

Location: Farrotto's Pasta & Pizzeria
9525 Manchester Road Rock Hill, MO 63119
12:30 p.m. to 4:00 p.m.

Would you Get Locked Up for a Great Cause?

Walk Team Captains or team members will be given a bail amount by a celebrity judge and locked up at Farrotto’s. They will have up to 1 1/2 hours to come up with their bail amount, which raises money for their Unite Walk Team. They will have access to their cell phone and contact list. Drink specials and an appearance from Louie.

Don’t want to be locked up? Come and watch, Farrotto’s will donate 20% of their sales to Gateway Hemophilia Association that day.

Click here to sign up.

Questions call (314) 482-5973 or info@GatewayHemophilia.org

 

Apr 07

vWD Talk

6:30 p.m.

More info coming soon.

 

Sponsored by:

Apr 17

World Hemophilia Day

Supported by the World Federation of Hemophilia (WFH), hemophilia awareness day was first established in 1989. The date of 17th April was chosen to honor Frank Schnabel the founder of WFH, whose birthday falls on the same date.

Click here for more information and events for World Hemophilia Day. 

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Apr 23-26

HFA Symposium

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters. GHA’s scholarship application closed January 20, 2020.

Click here to register with HFA or for more information.

 

May 02

Volunteer Opportunity

6:00 a.m. to 12:00 p.m.

We are looking for volunteers for GHA’s Unite for Bleeding Disorders Walk and 5K on May 2, 2020 in Forest Park!

Volunteer Opportunities:

Course Volunteer: volunteers will be on the 1 mile or 5K course to direct walkers and runners. Time 8:45 a.m. – 10:30 a.m.

Set Up Crew: Setting up tables, tents, and chairs at the walk site. Time 6:15 a.m. – 8:15 a.m.

Break Down Crew: Break down tents, tables, and chairs after the event is over. Time 10:30 a.m. – 12:00 p.m.

Registration Table: Hand out event t-shirts. Time 8:00 a.m. – 10:00 a.m.

SIGN UP HERE

If you have any questions, contact Jen at jmcnamee@gatewayhemophilia.org

 

May 02

Unite for Bleeding Disorders Walk & 5K

9:30 a.m. (registration opens at 8:30 a.m.)

 

Register Here!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. A 1 mile and 5K course are both offered. Chip timing available for the 5K at no additional charge.

May 06

Jivi

6:30 p.m.

Sponsored by:

May 15

Expecting the Unexpected: Emergencies Happen

Location: Jefferson City, MO
6:00 p.m. to 8:00 p.m.

Bleeding disorders can impact how you respond to emergencies, such as accidents, trauma, or natural disasters. This program will help you and your family to develop an emergency plan that’s right for you.
Speaker: April Littrell

RSVP to jmcnamee@gatewayhemophilia.org

Sponsored by:

Jun 03-06

Camp Notaclotamongus

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025
12:00 p.m.

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

Camper Packing List

Camp Flyer

2020 Camp Theme – Pirates

Application deadline April 30

 

Jul 10-12

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road, Chesterfield, Missouri, 63017

As an organization dedicated to the education and advocacy for our community, we decided 24 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Please contact info@gatewayhemophilia.org with any questions. 2020 Theme: You Always Need to Factor in Home

Aug 06-08

NHF Bleeding Disorders Conference

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s Bleeding Disorders Conference in Atlanta, GA, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate August 6-8, 2020.

Click Here for GHA’s Scholarship application, which is due May 1, 2020.

 

NHF’s Bleeding Disorders Conference Info

Aug 14-16

Adult Retreat

We are stronger together!

Click here to register

DEADLINE July 15, 2020

The Adult Retreat is for adults with a bleeding disorder ages 20+. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN!

GHA Skyline g

 

 

Aug 20

Wine Tasting Fundraiser

Location: Farotto's Pasta & Pizzeria
9525 Manchester Road Rock Hill, MO 63119
6:00 PM to 8:00 PM

tasting-wine

 

All proceeds from GHA’s Wine Tasting fundraising will benefit the educational scholarship fund for our members with a bleeding disorder who are furthering their education.

Click here to register!

6:00 pm to 8:00 pm – complimentary valet parking, wine and beer tasting. 
Samplings of Farotto’s appetizers. Tickets are $30 in advance, $35 day of event.

Sep 14

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:00 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

SCHEDULE:

10:00 am…Registration & Putting Contest

11:00 am…Lunch, Silent Auction & Driving Range

12:00 pm…Shotgun Start

5:00 pm..…Reception & Silent Auction

5:30 pm…..Dinner & Awards

Nov 14

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED (Event sells out)

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

Register here!