Events

Mar 01-05

NHF’s Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

You can Register with NHF

Mar 10

Advocacy Day Training

7:00 p.m.

Learn effective grassroots advocacy techniques and how to do it virtually! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

Advance registration is required, click here to register! After registering, you will receive a confirmation email containing information about joining the meeting. If you have any questions contact jmcnamee@gatewayhemophilia.org or (314) 482-5973.

Advocacy Training: Zoom techniques, Sharing Your Story & Talking Points for Advocacy Day

Mar 11

Missouri Advocacy Day

Location: Virtual

Join us and let our voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy. The registration deadline was February 25. Please contact us if you have any questions at  info@GatewayHemophilia.org.MO State Capitol

Sponsored by:

   

Mar 12

Women’s Program

6:30 p.m.

Women Who BleedThis program is designed to provide a comprehensive discussion on challenges faced by women with bleeding disorders, importance of early, accurate diagnosis, self/patient advocacy, resulting in better treatment plan and better outcomes in managing their bleeding disorders’ that impacts their care and quality of life.”

Speaker: Jessica T Lovercamp RN, BSN, Bayer Healthcare Pharmaceuticals, South Central Hematology Nurse Educator

Sponsored by:

Participants who register and attend Women Who Bleed, will be invited to a Virtual Paint and Sip class. You will be guided step by step through a virtual class from the comfort of your own home via Zoom. Supplies provided to registered attendees.

Sponsored by:

 

You must register in advance for this meeting by clicking here. We have a limited number of spots, the registration deadline is March 5.

This free event is open to women in the bleeding disorders community within GHA’s service with a bleeding disorder, carriers, and caregivers of a person with a bleeding disorder.

Apr 03

Winter Membership Meeting

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025
10:00 a.m. to 12:00 p.m.

The members of GHA are invited to gather for a membership update, education, networking, and fun, while developing community. This event is only for individuals affected by a bleeding disorder and their immediate family. The event also includes lunch and industry exhibits. GHA will follow social distancing and COVID guidelines. This year our membership meeting will take place at Camp Wyman, since campers missed an in person camp in 2020 we wanted to hold it at Camp Wyman.  RSVP by March 27 to JMcnamee@GatewayHemophilia.org

Apr 16

GHA Young Adult Day Hike

Location: Lake Ozark, MO
9:30 a.m.

GHA’s young adults ages 19-25 with a bleeding disorder and their significant other  are invited to participate in an outdoor hike at Lake Ozark, MO.

Please wear proper clothes and shoes for hiking. Check the weather prior to the hike to prepare. Lunch, and snacks provided. Questions contact Bridget at info@gatewayhemophilia.org or (314) 482-5973. RSVPs are required no later than 3/26.

Register here!

Apr 16-18

Adult Retreat

We are stronger together!

Register here!

The Adult Retreat is for adults with a bleeding disorder ages 20+. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN!

Registration deadline March 26.

GHA Skyline g

 

 

Apr 23

Clean out your closets to support GHA!

Get a jump on your spring cleaning and support GHA at the same time! From now until April 23rd, GHA will be collecting gently used items (detailed below) to benefit our Unite for Bleeding Disorders Walk & 5K. If you are part of a walk team, the money raised from your donations will directly support your team’s fundraising goal!

If you have any questions, or would like to schedule a time to drop off your donations, please contact Jen at jmcnamee@gatewayhemophilia.org or 636-675-4911.

Jun 09-11

Camp Notaclotamongus

3:00 p.m. to 4:15 p.m.

Camp Notaclotamongus provides campers with bleeding disorders a safe virtual camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

 

2021 Camp Theme – Zoo (m)

Application deadline May 31

You must register in advance for this meeting by clicking here. The registration deadline is May 31.

Jul 09-11

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road, Chesterfield, Missouri, 63017

As an organization dedicated to the education and advocacy for our community, we decided 25 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

The deadline to register for the in person meeting is June 20, 2021.

Please contact info@gatewayhemophilia.org with any questions.

Jul 11

Unite for Bleeding Disorders Walk

Location: DoubleTree
16625 Swingley Ridge Rd, Chesterfield, MO 63017
9:30 a.m. (registration opens at 8:30 a.m.)

 

 

Registration coming soon!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research.

Click here for the 2019 video!

Aug 19

Wine Tasting Fundraiser

6:00 p.m. to 8:00 p.m.

tasting-wine

(pending local and state guidelines)

All proceeds from GHA’s Wine Tasting fundraising will benefit the educational scholarship fund for our members with a bleeding disorder who are furthering their education.

Registration coming soon!

6:00 pm to 8:00 pm – complimentary wine and beer tasting. 
Samplings of appetizers. Tickets are $30 in advance, $35 day of event.

Aug 26-28

NHF Virtual Bleeding Disorders Conference!

Every year NHF’s Bleeding Disorders Conference brings together thousands of families and passionate professionals for in-person education and networking.

 

 

NHF’s Bleeding Disorders Conference Info

Sep 13

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:30 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

SCHEDULE:

10:30 am…Registration & Putting Contest

11:00 am…Lunch, Silent Auction & Driving Range

12:00 pm…Shotgun Start

5:00 pm..…Reception, Silent Auction & Awards

Oct 08-10

Regional Women’s Retreat

Location: Margaritaville
494 Tan Tara Estate Drive, Osage Beach, MO 65065

GHA will co-host a Hybrid Women’s Retreat with Midwest Hemophilia Association, Nebraska Chapter of NHF, and Hemophilia of Iowa, for women 18 and older with a bleeding disorder, carriers, and caregivers of a person with a bleeding disorder. Attendees must be a member and live in GHA’s service area. Registration closes September 1, 2021. Contact info@GatewayHemophilia.org with any questions.

Click here to Register!

Sponsored by

Oct 21-24

HFA Symposium

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support!

Nov 06

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED 

$150 per table of six ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

Dec 19

GHA Holiday Party

Location: The Magic House
516 S. Kirkwood Rd., St. Louis, MO 63122
6:00 PM to 8:00 PM

Magic House

Event Flyer!

6:00 Welcome & Membership Meeting

6:30 Pictures with Santa

**Cookies and drinks provided**

RSVP Deadline  December 3rd jmcnamee@gatewayhemophilia.org or

(314) 482-5973