Events

Aug 25-27

NHF Bleeding Disorder Conference!

Location: Virtual & Houston, TX

Every year NHF’s Bleeding Disorders Conference brings together thousands of families and passionate professionals for in-person education and networking.

NHF’s Bleeding Disorders Conference Info

 

Sep 12

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:30 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start / 5:00 pm..…Reception, Silent Auction & Awards

The money raised at this tournament will be used to fund the programs and services provided throughout the year to people affected by bleeding disorders. GHA hosts educational conferences specific to bleeding disorders, funds research, supports advocacy, provides educational scholarships, provides emergency financial assistance, dental assistance, medic alerts, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

Sep 18

Top Golf Program

Location: TopGolf
16851 N. Outer 40 Rd., Chesterfield, MO 63005
4:00 p.m. to 6:00 p.m.

To Perry Parker, a patient advocate for CSL Behring, golf is a “perfect sport” for someone with a bleeding disorder. It’s a physical activity that allows both kids and adults to enjoy the outdoors without putting too much stress on their joints or risking a bruise. Parker would know. He’s taken part in three U.S. Opens and won five times on the Canadian Tour in a more than 30 years as a professional golfer.  Perry continues to be active on the Australian Legends Tour and European senior tours.  He also hosts an annual clinic for kids taking part in CSL Behring’s Gettin’ in the Game℠ Junior National Championship, a sports competition for kids and teens with bleeding disorders. Join us for an afternoon of golf. RSVP to jmcnamee@gatewayhemophilia.org by September 10.

Sponsored by:

Sep 20

Lesson Plans: Navigating School with a Bleeding Disorder

Location: Bradden's Restaurant
515 S Main St, St Charles, MO 63301
6:00 p.m.

Topic Description: Learn how students, parents, family members, and school staff can work together to provide a positive learning environment for students with a bleeding disorder—from preschool through college. Speaker: Kevin Ellebrecht, Community Education Specialist

RSVP to Jen at jmcnamee@gatewayhemophilia.org or 636-675-4911 by 8/8

Sponsored by:

Sep 21

The Joint Movement

Location: Madison's
216 Madison St. Jefferson City, MO
6:00 p.m.

The Intersection Between Joint Health, Bleeding Disorders and Joint Pain

Join us for a joint health workshop as part of The Joint Movement—a whole program built to keep people with bleeding disorders moving. RSVP by: September 14 to jmcnamee@gatewayhemophilia.org

Sponsored by:

Oct 14-16

Regional Women’s Retreat

Location: Margaritaville
494 Tan Tara Estate Drive, Osage Beach, MO 65065

GHA will co-host a Women’s Retreat with Midwest Hemophilia Association, Nebraska Chapter of NHF, and Hemophilia of Iowa, for women 18 and older with a bleeding disorder, carriers, and caregivers of a person with a bleeding disorder. Attendees must be a member and live in GHA’s service area. Registration deadline is September 9, 2022. Contact info@GatewayHemophilia.org with any questions.

Register here!

Sponsored by

Oct 27-30

Gettin’ in the Game Junior National Championship

GHA has been invited to send two individuals with a bleeding disorder between the ages of 12-18 to the Gettin’ in the Game event which will take place November 5-7, in Phoenix, AZ. The event will include competitions in baseball and golf. Selected nominees will receive hotel and airfare for themselves and one parent or guardian. Throughout the weekend, participants will have the opportunity to attend educational sessions to learn more about bleeding disorders and the importance of physical fitness and healthy lifestyles. Participants will also learn the fundamentals of golf or baseball, proper stretching techniques, and the importance of safety on and off the field.

To be eligible for nomination by GHA, participants must have a bleeding disorder, be between the ages of 12-18, and live in the GHA service area (i.e. southern Illinois, eastern Missouri). Applications due August 25, 2022. For more information on this year’s modified event click here for an application.

Nov 05

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Theme: Y2K, all rounds will be around our theme. Prize to best dressed table.

Register HERE!

Advance registration and payment is REQUIRED Deadline is November 1!

$200 per table of eight ($25/person, individual seats are available, 4 person minimum per table) 

Beer, soda, water and light snacks provided!

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Trivia Flyer!

Dec 05

GHA Holiday Party

Location: The Magic House
516 S. Kirkwood Rd., St. Louis, MO 63122
6:00 PM to 8:00 PM

Event Flyer!

6:00 Welcome & Membership Meeting

6:30 Pictures with Santa

**Cookies and drinks provided**

RSVP Deadline  November 30th jmcnamee@gatewayhemophilia.org or

(314) 482-5973

Jan 01

2023 Events!

 

SEO, SEA and content: digital trends in 2023

Apr 13-16

HFA Symposium

Location: Sea World Renaissance Hotel
6677 Sea Harbor Drive, Orlando, FL 32821

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support! Click here to apply for GHA’s participant grant, which is due January 15, 2023.

Click here to register with HFA or for more information.

 

 

Apr 28-30

Adult Retreat

Location: Margaritaville, Lake Ozark MO
494 Tan Tar A Drive, Osage Beach, Missouri 65065

We are stronger together!

The Adult Retreat is for adults with a bleeding disorder ages 20+. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN! Check back for an agenda. Registration will open January 1, 2023.

Jul 14-15

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road, Chesterfield, Missouri, 63017

As an organization dedicated to the education and advocacy for our community, we decided 27 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Registration deadline June 16, 2023.

Please contact info@gatewayhemophilia.org with any questions.

Jul 16

Unite for Bleeding Disorders Walk & 5K

Location: DoubleTree
16625 Swingley Ridge Rd, Chesterfield, MO 63017
9:30 a.m. (registration opens at 8:30 a.m.)

 

 

REGISTER YOUR TEAM HERE!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research.

Click here for the 2019 video!