Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.


March Membership Meeting

Start Time: 12:30 p.m.

End Time: 2:30 p.m.

Join us for an update on resources offered from your chapter and HTCs. One of the best parts of being your own advocate is that you don’t have to solve all the problems on your own. You can and should ask for help. Register at by February 23.


12:30 – Attendees Arrival and Welcome

12:45 – Lunch

12:55 – Welcome from Executive Director

1:00 – Program

1:30 – 2:30 Yard Games and Pickleball Activity


NBDF’s Washington Days

Make your voice be heard at NBDF’s Washington Days

Join us to:

  • Meet with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care
  • Learn effective grassroots advocacy techniques

GHA’s scholarship is now closed.

For more information and updates related to Washington Days 2024, visit NBDF’s website


Men’s Retreat

This retreat is for men 21+ that live in GHA or Midwest Hemophilia Association’s service area. To attend, you must also

1) have a bleeding disorder;
2) or be a spouse of someone with a bleeding disorder; and/or
3) be a parent of someone with a bleeding disorder.

Register here! Registration deadline March 14, 2024.



HFA Symposium

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support! GHA’s participant grant closed January 15, 2024. Register with HFA here.


World Hemophilia Day Celebration

Start Time: 6:00 p.m.

Join us over dinner to celebrate World Hemophilia Day at TBD. You can see the St. Louis Wheel lit up in red in honor of World Hemophilia Day. RSVP by April 10 to Carly@gatewayhemophilia.orgProgram: One family: A gathering of the generations. This educational program is sponsored by




Adult Retreat

We are stronger together!

The Adult Retreat is for adults with a bleeding disorder ages 21+ within GHA’s service area. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN! Click here for a draft Agenda. Registration deadline is April 1st, click here to register!


Give STL Day



You Can Make a Difference!
Join the movement and make a gift to benefit our community.
Give STL Day is an annual event which raises money and awareness for nonprofits in the St. Louis region. Since its inception in 2014, Give STL Day has raised over $26.2 million.

Taste of Tequila, Splash of Charity

Start Time: 6:00 p.m.

End Time: 8:00 p.m.

All proceeds benefit educational scholarships for our members with a bleeding disorder. 


Tequila Tastings from various tequila vendors

Ticket includes one Sunny’s Specialty Margarita or Beer

Photobooth by Fête Booth

Dinner Buffet from Sunny’s Cantina

Silent Auction & Live Music from 2 Pedros

Tickets are $50 in advance, $60 day of the event

*must be 21+ years of age, space is limited

Questions (314) 482-5973

Register here!