Events

Dec 06

Ugly Sweater Extravaganza Cooking Class

3:00 central

Join GHA and NEHA for an ugly sweater cooking class!

Register in advance for this meeting here!
After registering, you will receive a confirmation email containing information about joining the meeting.
The Gateway Hemophilia Association (GHA) and the New England Hemophilia Association (NEHA) are partnering  for a fun holiday themed event! You will meet community members from across the country and learn how to make a Midwest and New England cookie/treat unique to each region. Each household registered receives a gift card to help purchase the supplies and receive two aprons. This interactive event is generously supported by Octapharma. Ugly sweaters and holiday attire is encouraged to be worn.

Sponsored by:

Dec 15

Spotlight on Unaffected Siblings, followed by a game of BINGO

6:00 p.m.

Topic Description: This workshop will help to empower parents and caregivers with new tools to help ensure that each child’s needs are met.

Sponsored by:

BINGO

Sponsored by:

Register in advance for this meeting here!
After registering, you will receive a confirmation email containing information about joining the meeting.

Dec 22

Tilles Park Winter Wonderland

Location: Tilles Park
9551 Litzinger Road St. Louis, MO 63124.
5:00 p.m. to 7:30 p.m.

GHA is looking for volunteers to collect the admission fee from each car at the end of the Winter Wonderland light show. If you are available to volunteer please email Info@GatewayHemophilia.org.

The shift is 5:15 p.m. – 7:30 p.m. We need a minimum of 6 volunteers, children under 16 are not permitted to volunteer. All volunteers will be required to wear face coverings at all times. Thank you in advance to our volunteers!

Dec 31

2021

See below for the 2021 events!

Mar 03-05

NHF’s Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

You can Register with NHF

Apr 16-18

Adult Retreat

We are stronger together!

Registration will open after January 1, 2021

The Adult Retreat is for adults with a bleeding disorder ages 20+. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN!

GHA Skyline g

 

 

Jun 02-05

Camp Notaclotamongus

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025
12:00 p.m.

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

Camper Packing List

Camp Goals & Schedule

2021 Camp Theme – Pirates

Application deadline April 30

 

Jul 09-11

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road, Chesterfield, Missouri, 63017

As an organization dedicated to the education and advocacy for our community, we decided 25 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

The deadline to register for the in person meeting is June 20, 2021.

Please contact info@gatewayhemophilia.org with any questions.

Jul 11

Unite for Bleeding Disorders Walk

Location: DoubleTree
16625 Swingley Ridge Rd, Chesterfield, MO 63017
9:30 a.m. (registration opens at 8:30 a.m.)

 

 

Registration coming soon!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research.

Click here for the 2019 video!

Aug 19

Wine Tasting Fundraiser

6:00 p.m. to 8:00 p.m.

tasting-wine

(pending local and state guidelines)

All proceeds from GHA’s Wine Tasting fundraising will benefit the educational scholarship fund for our members with a bleeding disorder who are furthering their education.

Registration coming soon!

6:00 pm to 8:00 pm – complimentary wine and beer tasting. 
Samplings of appetizers. Tickets are $30 in advance, $35 day of event.

Sep 20

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:30 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

SCHEDULE:

10:30 am…Registration & Putting Contest

11:00 am…Lunch, Silent Auction & Driving Range

12:00 pm…Shotgun Start

5:00 pm..…Reception, Silent Auction & Awards

Oct 08-10

Regional Women’s Retreat

Location: Margaritaville
494 Tan Tara Estate Drive, Osage Beach, MO 65065

GHA will co-host a Women’s Retreat with Midwest Hemophilia Association, Nebraska Chapter of NHF, and Hemophilia of Iowa, for women 18 and older with a bleeding disorder, carriers, and caregivers of a person with a bleeding disorder. Attendees must be a member and live in GHA’s service area. Registration closes September 1, 2021. Contact info@GatewayHemophilia.org with any questions.

Click here to Register!

Sponsored by

Oct 21-24

HFA Symposium

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support!