Events

Dec 16

Stepping Up: Individualizing Your Prohy Plan

Location: 44 Stone Public House
3910 Peachtree Dr, Columbia, MO 65203
6:00 p.m.

This session will help patients and their families understand what an individualized prophylaxis plan is and how to get started. As each hemophilia patient is different—the combination of their age, weight, bleeding history, how they metabolize Factor, and lifestyle makes them unique—we will explore the benefits to tailoring a treatment plan with a Health Care Provider to each patient’s needs. Event Flyer!

Speaker: April Littrell
RSVP by 12/12/18 to jmcnamee@gatewayhemophilia.org
or 314-482-5973
Sponsored by:

After the educational program Santa will make an appearance with treats for the attendees.

Sponsored by:

Dec 20

GHA Holiday Party

Location: Magic House
516 S Kirkwood Rd, St Louis, MO 63122
6:00 PM to 8:00 PM

Magic House

Event Flyer

6:00 Welcome & Membership Meeting, 6:30 Pictures with Santa, *Cookies and drinks provided 

RSVP Deadline 12-10-18 to  jmcnamee@gatewayhemophilia.org or

(314) 482-5973

Dec 23

Volunteer Opportunity!

6500 block of Murdoch Avenue, St. Louis, MO
5:30 p.m. to How ever long you can give!

Join us Sunday, December 23 at Candy Cane Lane.

We will collect donations and distribute information about GHA as cars drive through Candy Cane Lane to look at the Christmas lights. If you are interested email info@GatewayHemophilia.org.

Dec 27

Teen Holiday Party

Location: St. Louis Escape
1517 S. 8th St., St. Louis, MO 63104
3:00pm to 5:00pm

Event Flyer

GHA teens and siblings ages 13-18 are invited to join us for an escape room and pizza party.

RSVP by December 21st to Jen McNamee at jmcnamee@gatewayhemophilia.org or 636-675-4911

Feb 28-03

Youth Effectively Transitioning to Independence

Location: Camp Collins
3001 SE Oxbow Pkwy, Gresham, OR 97080

 

Application Deadline: November 10, 2018

GHA is looking for a prominent leader that will be willing to contribute to the design and creation of teen programs in the future. The teen must live within the GHA service area, be ages 14-20 years old, and able to attend the YETI conference February 28- March 3, 2019. YETI will be held at Camp Collins.

Hemophilia Foundation of Oregon (HFO) created the YETI conference to help bleeding disorder organizations work to transition teens from living in their parents’ home to successfully living a life on their own after high school.

Teens must arrive in Portland by 3 p.m. on the 28th and cannot depart from Portland until after 1 p.m. on the 3rd. The teen will travel with either a staff member or volunteer from GHA round-trip, no one under 18 should be flying alone to and from YETI.

Mar 06

Advocacy Training Dinner

Location: Capitol Plaza Hotel
415 W. McCarty Street Jefferson City, MO 65101
6:30 p.m.

Learn effective grassroots advocacy techniques! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

RSVP for the training dinner info@gatewayhemophilia.org or (314) 482-5973. Event Flyer

Advocacy Training: Sharing Your Story

Teen Advocacy Training: The teens will learn about the importance of personal advocacy through a variety of situational discussions.

Red Tie Challenge

 

Mar 07

Missouri Advocacy Day

Location: Missouri State Capitol
201 W Capitol Ave, Jefferson City, MO 65101
8:30 a.m.

Join us and let our voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy. Registration deadline is January 25. Please contact Bridget Tyrey at (314) 482-5973 or at Info@GatewayHemophilia.org with any questions. Click here to register!

MO State Capitol

Sponsored by:

     

Mar 27-29

NHF’s Washington Days

Location: Hyatt Regency at Capitol Hill
400 New Jersey Ave NW, Washington DC 20001.

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

GHA Scholarship Application, due February 1, 2019

Register Today with NHF

Apr 04-07

HFA Symposium

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

 

Click here to register with HFA or for more information.

Click here for GHA’s Scholarship Application – due January 25, 2019.

 

Apr 17

World Hemophilia Day

Supported by the World Federation of Hemophilia (WFH), hemophilia awareness day was first established in 1989. The date of 17th April was chosen to honor Frank Schnabel the founder of WFH, whose birthday falls on the same date.

Click here for more information and events for World Hemophilia Day. 

2010WHD_Logo_Eng

Apr 17

GHA’s 50th Anniversary Celebration!

Location: The Missouri History Museum
5700 Lindell Blvd, St. Louis, MO 63112
6:00 p.m. to 9:00 p.m.

May 04

Unite for Bleeding Disorders Walk & 5K

9:30 a.m. (registration opens at 8:30 a.m.)

 

Register Here!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. A 1 mile and 5K course are both offered. Chip timing available for the 5K at no additional charge.

Jun 05-08

2019 Camp Notaclotamongus

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025
12:00 p.m.

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.Camper Packing List.

2019  Camp Theme – Wild West

Jul 12-14

Family Education Weekend

As an organization dedicated to the education and advocacy for our community, we decided 23 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Aug 22

Wine Tasting Fundraiser

Location: Farotto's Pasta & Pizzeria
9525 Manchester Road Rock Hill, MO 63119
6:00 PM to 8:00 PM

tasting-wine

 

 

All proceeds from GHA’s Wine Tasting fundraising will benefit the educational scholarship fund for our members with a bleeding disorder who are furthering their education.

Click here to register!

6:00 pm to 8:00 pm – complimentary valet parking, wine and beer tasting. 
Samplings of Farotto’s appetizers. Tickets are $30 in advance, $35 day of event.

Sep 23

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:00 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

SCHEDULE:

10:00 am…Registration & Putting Contest

11:00 am…Lunch by Pappy’s Smokehouse, Silent Auction & Driving Range

12:00 pm…Shotgun Start

5:00 pm..…Reception & Silent Auction

5:30 pm…..Dinner & Awards, Emcee TBD

Nov 02

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED (Event sells out)

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

Register here!