Events

Dec 11

Stepping Up: Individualizing Your Prophy Plan

Location: Big A's on the Riverfront
308 N. Main St., St. Charles, MO 63301
6:00pm to 8:00pm

This session will help patients and their families understand what an individualized prophylaxis plan is and how to get started. As each hemophilia patient is different – the combination of their age, weight, bleeding history, how they metabolize Factor, and lifestyle makes them unique – we will explore the benefits to tailoring a treatment plan with a healthcare provider to each patient’s needs.

Event Flyer

RSVP by 12/2 to 314-482-5973 or jmcnamee@gatewayhemophilia.org

Sponsored by:

Dec 15

GHA Holiday Party

Location: The Magic House
516 S. Kirkwood Rd., St. Louis, MO 63122
6:00 PM to 8:00 PM

Magic House

Event Flyer

6:00 Welcome & Membership Meeting

6:30 Pictures with Santa

**Cookies and drinks provided**

RSVP Deadline December 5th to  jmcnamee@gatewayhemophilia.org or

(314) 482-5973

Dec 22

Volunteer Opportunity!

6500 block of Murdoch Avenue, St. Louis, MO
5:30 p.m. - 7:30 and 7:30 - 9:30 p.m.

Join us Sunday, December 22 at Candy Cane Lane.

We will collect donations and distribute information about GHA as cars drive through Candy Cane Lane to look at the Christmas lights. If you are interested email info@GatewayHemophilia.org.

Dec 25

Tilles Park Winter Wonderland

Location: Tilles Park
9551 Litzinger Road St. Louis, MO 63124.
7:30 p.m. to 9:30 p.m.

GHA is looking for volunteers to collect the admission fee from each car at the end of the Winter Wonderland light show. If you are available to volunteer for a two hour shift from 7:30 – 9:30 p.m. please email Info@GatewayHemophilia.org.

Thank you in advance to our volunteers!

photo

Dec 31

2020

Check out our events for 2020 below!

Feb 01

Winter Membership Meeting

Location: Concord Bowl
11801 Tesson Ferry Rd., St. Louis, MO 63128

GHA members are invited to gather for a membership meeting. Space is limited, bowling will be distributed on a first come first serve basis. Attendees must attend the membership meeting to receive two hours of complimentary bowling, shoe rental, and light refreshments. This is for families affected by a bleeding disorder. 

RSVP By January 24 to  jmcnamee@gatewayhemophilia.org or (314) 482-5973

Feb 26-28

NHF’s Washington Days

Location: Hyatt Regency at Capitol Hill
400 New Jersey Ave NW, Washington DC 20001.

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

GHA’s Scholarship is due January 1, 2020    Register Today with NHF

Mar 04

Advocacy Training Dinner

Location: Capitol Plaza Hotel
415 W. McCarty Street Jefferson City, MO 65101
6:30 p.m.

Learn effective grassroots advocacy techniques! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

RSVP for the training dinner jmcnamee@gatewayhemophilia.org or (314) 482-5973. Event Flyer

Advocacy Training: Sharing Your Story & Talking Points for Advocacy Day

Red Tie Challenge

 

Mar 05

Missouri Advocacy Day

Location: Missouri State Capitol
201 W Capitol Ave, Jefferson City, MO 65101
8:30 a.m.

Join us and let our voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy. Registration deadline is February 3. Click here to register.

MO State Capitol

Sponsored by:

   

Mar 07

Men’s Group

Location: 66 Cigar
3860 S Lindbergh Blvd #111, St. Louis, MO 63127
6:30 p.m. to 8:30 p.m.

For Men 21 and older who are affected by a bleeding disorder

What: Join us for a bourbon tasting and a brief overview of cigars.

Mar 20-22

Regional Women’s Retreat

Location: Honey Creek Resort
12633 Resort Drive, Moravia, IA. 52571

GHA will co-host a Women’s Retreat with Midwest Hemophilia Association, Nebraska Chapter of NHF, and Hemophilia of Iowa, for women 18 and older with a bleeding disorder, carriers, and caregivers of a person with a bleeding disorder. Attendees must be a member and live in GHA’s service area.

Click here to register! Registration deadline is February 15, 2020.

 Sponsored by 

Apr 02-05

Youth Effectively Transitioning to Independence

Location: Camp Collins
3001 SE Oxbow Pkwy, Gresham, OR 97080

 

Application: Deadline is December 1, 2019

GHA is looking for a prominent leader that will be willing to contribute to the design and creation of teen programs in the future. The teen must live within the GHA service area, be ages 14-20 years old, and able to attend the YETI conference April 2- 5, 2020. YETI will be held at Camp Collins.

Hemophilia Foundation of Oregon (HFO) created the YETI conference to help bleeding disorder organizations work to transition teens from living in their parents’ home to successfully living a life on their own after high school.

Teens must arrive in Portland by 3 p.m. on the 2nd and cannot depart from Portland until after 1 p.m. on the 5th. The teen will travel with either a staff member or volunteer from GHA round-trip, no one under 18 should be flying alone to and from YETI.

Apr 23-26

HFA Symposium

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

Click here for GHA’s scholarship application, which is due January 20, 2020.

 

Click here to register with HFA or for more information.

 

May 02

Unite for Bleeding Disorders Walk & 5K

9:30 a.m. (registration opens at 8:30 a.m.)

 

Register Here!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. A 1 mile and 5K course are both offered. Chip timing available for the 5K at no additional charge.

Jun 03-06

Camp Notaclotamongus

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025
12:00 p.m.

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

Camper Packing List

Camp Flyer

2020 Camp Theme – Pirates

Application deadline April 30

 

Jul 10-12

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road, Chesterfield, Missouri, 63017

As an organization dedicated to the education and advocacy for our community, we decided 24 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Please contact info@gatewayhemophilia.org with any questions.

Aug 06-08

NHF Bleeding Disorders Conference

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s Bleeding Disorders Conference in Atlanta, GA, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate August 6-8, 2020.

Click Here for GHA’s Scholarship application, which is due May 1, 2020.

 

NHF’s Bleeding Disorders Conference Info

Aug 20

Wine Tasting Fundraiser

Location: Farotto's Pasta & Pizzeria
9525 Manchester Road Rock Hill, MO 63119
6:00 PM to 8:00 PM

tasting-wine

 

All proceeds from GHA’s Wine Tasting fundraising will benefit the educational scholarship fund for our members with a bleeding disorder who are furthering their education.

Click here to register!

6:00 pm to 8:00 pm – complimentary valet parking, wine and beer tasting. 
Samplings of Farotto’s appetizers. Tickets are $30 in advance, $35 day of event.

Sep 21

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:00 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

SCHEDULE:

10:00 am…Registration & Putting Contest

11:00 am…Lunch, Silent Auction & Driving Range

12:00 pm…Shotgun Start

5:00 pm..…Reception & Silent Auction

5:30 pm…..Dinner & Awards