Events

Dec 04

GHA Holiday Party

Location: The Magic House
516 S. Kirkwood Rd., St. Louis, MO 63122
6:00 PM to 8:00 PM

Event Flyer!

6:00 Welcome & Membership Meeting

6:30 Pictures with Santa

**Cookies and drinks provided**

RSVP Deadline  November 28th to  info@GatewayHemophilia.org

Dec 06

Mastering Difficult Conversations

Location: Pastaria
7734 Forsyth Blvd Clayton, MO 63105
6:00 p.m.

Explore how to build trust and connection through effective conversations. Speaker: Bobbi Sellers, MBA, MSN, RN Hemophilia Community Clinical Education Manager 

RSVP by 12/1 to info@GatewayHemophilia.org

 

Sponsored by:

 

Dec 11

Improv for Families

3:00 p.m. to 4:00 p.m.

Improv is an interactive virtual session. In this session, you will use improvisational comedy skills to build self-confidence, competence and self-advocacy skills. Participants should leave feeling empowered (and with sore belly muscles from laughing). Seasoned improv comedians will facilitate short improv games and utilize their comedic talents to engage teens in this one hour session. Created by Second City Chicago
alumni Katie Klein and T.J. Shanoff, The Shalom Collaboration entertains, empowers, and uplifts organizations and communities through music, improv, and communications learning; one laugh at a time.

Register in advance for this meeting by clicking here:

After registering, you will receive a confirmation email containing information about joining the meeting.

Sponsored by:

Dec 29

Tilles Park Winter Wonderland

Location: Tilles Park
9551 Litzinger Road St. Louis, MO 63124.
5:30 p.m. to 9:30 p.m.

GHA is looking for 2-4 volunteers to collect the admission fee from each car at the end of the Winter Wonderland light show from 5:00-9:30 p.m. If you would like to volunteer email Info@GatewayHemophilia.org or come by and see us! The park is open 5:30-9:30 p.m. Thank you in advance to our volunteers!

Jan 01

2023 Events!

 

SEO, SEA and content: digital trends in 2023

Feb 11

Winter Membership Meeting

Location: Dave and Buster's
13857 Riverport Dr, Maryland Heights, MO 63043
12:00 p.m. to 2:00 p.m.

The members of GHA are invited to gather for a membership update, education, networking, and fun, while developing community. This event is only for individuals affected by a bleeding disorder and their immediate family. The event also includes lunch and industry exhibits. RSVP by February 3, to Info@GatewayHemophilia.org

Mar 08-10

NHF’s Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care
  • Learn effective grassroots advocacy techniques

Click here to apply for a GHA scholarship to attend Washington Days, deadline is January 6, 2023.

Apr 13-16

HFA Symposium

Location: Sea World Renaissance Hotel
6677 Sea Harbor Drive, Orlando, FL 32821

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support! Click here to apply for GHA’s participant grant, which is due January 15, 2023.

Click here to register with HFA or for more information.

 

 

Apr 17

World Hemophilia Day

Supported by the World Federation of Hemophilia (WFH), hemophilia awareness day was first established in 1989. The date of 17th April was chosen to honor Frank Schnabel the founder of WFH, whose birthday falls on the same date. This year the Planetarium will be lit up in red again in honor of World Hemophilia Day!

The theme of the event this year is “Access for All: Prevention of bleeds as the global standard of care”

Click here for more information and events for World Hemophilia Day. 

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Apr 28-30

Adult Retreat

Location: Margaritaville, Lake Ozark MO
494 Tan Tar A Drive, Osage Beach, Missouri 65065

We are stronger together!

The Adult Retreat is for adults with a bleeding disorder ages 20+. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN! Check back for an agenda. Registration will open January 1, 2023.

May 18

Taste of Tequila, Splash of Charity

Location: Sunny's Cantina
6655 Manchester Ave., St. Louis, MO 63139
6:00 p.m. to 8:00 p.m.

GHA’s Annual Tequila and Margarita Tasting

All proceeds will benefit educational scholarships for our members with a bleeding disorder. 

Featuring:

Tequila Tastings from Patron, Hiatus, and Una Vida

One Sunny’s Specialty Margarita or Sol Beer from Molson Coors

Dinner Buffet from Sunny’s Cantina

Silent Auction & Live Music

Tickets are $50 in advance, $60 day of the event Register Here!

*must be 21+ years of age, space is limited

Event Flyer!

Questions (314) 482-5973  info@gatewayhemophilia.org

Jun 07-09

Camp Notaclotamongus

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

2023 Camp Theme – Holidays

Application deadline is April 30

Jul 14-15

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road, Chesterfield, Missouri, 63017

As an organization dedicated to the education and advocacy for our community, we decided 27 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Registration deadline June 16, 2023.

Please contact info@gatewayhemophilia.org with any questions.

Jul 16

Unite for Bleeding Disorders Walk & 5K

Location: DoubleTree
16625 Swingley Ridge Rd, Chesterfield, MO 63017
9:30 a.m. (registration opens at 8:30 a.m.)

 

 

REGISTER YOUR TEAM HERE!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research.

Click here for the 2019 video!

Aug 17-19

NHF Bleeding Disorder Conference!

Location: Washington, D.C.

Every year NHF’s Bleeding Disorders Conference brings together thousands of families and passionate professionals for in-person education and networking. Click here to apply for GHA’s participant grant, which is due May 31, 2023.

NHF’s Bleeding Disorders Conference Info

 

Sep 11

Tee off 4 Hemophilia

Location: TBD
10:30 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start / 5:00 pm..…Reception, Silent Auction & Awards

The money raised at this tournament will be used to fund the programs and services provided throughout the year to people affected by bleeding disorders. GHA hosts educational conferences specific to bleeding disorders, funds research, supports advocacy, provides educational scholarships, provides emergency financial assistance, dental assistance, medic alerts, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

 

Oct 13-15

FAB

Location: TBD

Gateway Hemophilia Association will co-host a FAB (Females And Bleeding Disorders) conference with Midwest Hemophilia Association, Nebraska Chapter of NHF, and Hemophilia of Iowa, for women 18 and older with a bleeding disorder, carriers, spouses of a person with a bleeding disorder, and parents of a person with a bleeding disorder. Parents must live in the same household. Attendees must be a member and live in GHA’s service area. The registration deadline will be September 9, 2023. Contact info@GatewayHemophilia.org with any questions.

“Check back in April for registration”

Sponsored by