Events

Mar 06

Advocacy Training Dinner

Location: Capitol Plaza Hotel
415 W. McCarty Street Jefferson City, MO 65101
6:30 p.m.

Learn effective grassroots advocacy techniques! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

RSVP for the training dinner info@gatewayhemophilia.org or (314) 482-5973. Event Flyer

Advocacy Training: Sharing Your Story

Teen Advocacy Training: The teens will learn about the importance of personal advocacy through a variety of situational discussions.

Red Tie Challenge

 

Mar 07

Missouri Advocacy Day

Location: Missouri State Capitol
201 W Capitol Ave, Jefferson City, MO 65101
8:30 a.m.

Join us and let our voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy. Registration deadline was January 25.

MO State Capitol

Sponsored by:

     

Mar 09

Jail or Bail

Location: Farrotto's Pasta & Pizzeria
9525 Manchester Road Rock Hill, MO 63119
12:30 p.m. to 3:30 p.m.

Would you Get Locked Up for a Great Cause?

Walk Team Captains or team members will be given a bail amount by a celebrity judge and locked up at Farrotto’s. They will have up to 1 1/2 hours to come up with their bail amount, which raises money for their Walk Team. They will have access to their cell phone and contact list. Drink specials and an appearance from Louie.

Don’t want to be locked up? Come and watch, Farrotto’s will donate 20% of their sales to Gateway Hemophilia Association that day.

Click here to sign up.

Questions call (314) 482-5973 or info@GatewayHemophilia.org

 

Mar 09

Drone Flying & Repair with the Whirlybird RC Club

Location: St. Louis County Library - Oak Bend Branch
842 S. Holmes Ave., St. Louis, MO 63122
10:00 a.m. to 12:00 p.m.

You’re invited to learn about flying drones and helicopters as a hobby or potential career. Watch the experts fly. Ask questions. Bring your own RC Machine to get one on on instruction or use a simulator to learn to fly.

Event Flyer

RSVP BY WEDNESDAY, March 5th to jmcnamee@gatewayhemophilia.org  or 314-482-5973.

This event is sponsored by:

in partnership with Gateway Hemophilia Association.

 

Mar 15

Panera Fundraiser for Team Von Willies

Location: Panera
453 Old Smizer Mill Rd, Fenton, MO 63026
4:00 p.m. to 8:00 p.m.

Bring this flyer or show the cashier an electronic version to the cashier when you place your order and Panera will donate a portion of your proceeds to Team Von Willies

Mar 18

Support Nick’s Blood Clotters

Location: Culver's Eureka
400 Meramec Blvd., Eureka, MO 63025
5:00 p.m. to 8:00 p.m.

Nick’s Blood Clotters is hosting a fundraiser for their Unite Walk team! Show your support by eating at Culver’s during the time listed above and 20% of the proceeds will be donated to Nick’s Blood Clotters and the Gateway Hemophilia Association! If you are unable to attend, consider making a donation to Nick’s Blood Clotters by clicking HERE.

Mar 19

Blood Drive

Location: MVRBC Donor Center
9860 Watson Road, Crestwood, MO 63126
7:00 a.m. to 1:00 p.m.

To sign up for an appointment to donate blood contact Karen Dickinson, Mississippi Valley Regional Blood Center at kldickinso@mvrbc.orgor (314) 281-5613.

 

Mar 20

Blood Drive

Location: MVRBC Donor Center
9860 Watson Road, Crestwood, MO 63126
1:00 p.m. to 7:00 p.m.

To sign up for an appointment to donate blood contact Karen Dickinson, Mississippi Valley Regional Blood Center at kldickinso@mvrbc.orgor (314) 281-5613.

Mar 21

Kendra Gives Back Fundraiser

Location: Kendra Scott at Plaza Frontenac
1701 S. Lindbergh Blvd., St. Louis, MO 63131
5:00 to 8:00 p.m.

Kendra Scott is hosting a Shopping Party to benefit GHA! Enjoy sips of wine, champagne, and sweet treats while you shop! 20% of all proceeds will benefit GHA’s Unite for Bleeding Disorders Walk/5K!

Not in St. Louis? You can make your purchase over the phone during the event and 20% will still go to GHA! Call Kendra Scott 314-266-7610

*online orders will not count towards the fundraiser, so be sure to call!

Mar 22-24

Women’s Retreat

Location: The Lodge of the Four Seasons
315 Four Seasons Drive Lake Ozark, MO 65049

GHA will host a Women’s Retreat for women 18 and older that are caregivers of a person with a bleeding disorder or have a bleeding disorder themselves. The focus of the conference will be education, personal growth and networking. Sessions will focus on bleeding disorders, treatment options and most importantly relaxation!

Deadline to register is March 1, 2019. Click here to register!

Mar 23

Blood Drive

To sign up for an appointment to donate blood contact Karen Dickinson, Mississippi Valley Regional Blood Center at kldickinso@mvrbc.orgor (314) 281-5613.

Mar 27-29

NHF’s Washington Days

Location: Hyatt Regency at Capitol Hill
400 New Jersey Ave NW, Washington DC 20001.

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

GHA’s Scholarship was due February 1, 2019

Register Today with NHF

Mar 31

Winter Membership Meeting

Location: Topgolf St. Louis
16851 N. Outer 40 Rd., Chesterfield, MO 63005
1:00pm

GHA members are invited to attend a membership meeting featuring a Gene Therapy Presentation by Christopher Walsh, MD, PhD. Lunch will be provided and complimentary golf will follow the presentation.

*This program is for consumers and caretakers of individuals with a bleeding disorder. Space is limited, golf will be distributed on a first come first serve basis. Attendees must attend the gene therapy presentation to receive complimentary golf.

RSVP by March 15th

Apr 04-07

HFA Symposium

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

 

Click here to register with HFA or for more information.

 

Apr 13

GHA Teen and Young Adult Day Hike

Location: Greensfelder Park
4515 Hencken Rd., St. Louis, MO 63069
9:00 a.m.

Click here for a map of Greensfelder Park

GHA’s Teen group and young adults will participate in an outdoor hike at Greensfelder park. This program is open for teens and young adults 16-25 with a bleeding disorder. They may also bring one person to hike with them.

Please wear proper clothes and shoes for hiking. Check the weather prior to the hike to prepare. Lunch, bottled water, and snacks provided. Questions contact Bridget at info@gatewayhemophilia.org or (314) 482-5973. RSVPs are required no later than 4/1.

Apr 17

World Hemophilia Day

Supported by the World Federation of Hemophilia (WFH), hemophilia awareness day was first established in 1989. The date of 17th April was chosen to honor Frank Schnabel the founder of WFH, whose birthday falls on the same date.

Click here for more information and events for World Hemophilia Day. 

2010WHD_Logo_Eng

Apr 17

GHA’s 50th Anniversary Celebration!

Location: The Missouri History Museum
5700 Lindell Blvd, St. Louis, MO 63112
6:00 p.m. to 8:30 p.m.

Join us as we take a look back at the last 50 years and celebrate the history of GHA and bleeding disorders. Monuments will be lit in red for this event honoring World Hemophilia Day and GHA’s 50th year!  The event includes a seated dinner, cash bar, and an awards presentation. We will honor members from the community and Dr. Bouhasin will be presented with a Lifetime Achievement Award for his service to the bleeding disorders community.Click here to register! Early registration is $25 per person, which will increase to $30 after March 15.

May 04

Volunteer Opportunity

6:00 a.m. to 12:00 p.m.

We are looking for volunteers for GHA’s Unite for Bleeding Disorders Walk and 5K on May 4, 2019!

Volunteer Opportunities:

Course Volunteer: volunteers will be on the 1 mile or 5K course to direct walkers and runners. Time 9:00 a.m. – 11:00 a.m.

Set Up Crew: Setting up tables, tents, and chairs at Cricket Field. Time 6:15 a.m. – 9:15 a.m.

Break Down Crew: Break down tents, tables, and chairs after the event is over. Time 11:30 a.m. – 12:00 p.m.

Registration Table: Hand out event t-shirts. Time 8:00 a.m. – 10:00 a.m.

If you have any questions or would like to volunteer contact: Jen at jmcnamee@gatewayhemophilia.org

 

May 04

Unite for Bleeding Disorders Walk & 5K

9:30 a.m. (registration opens at 8:30 a.m.)

 

Register Here!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. A 1 mile and 5K course are both offered. Chip timing available for the 5K at no additional charge.

Jun 05-08

Camp Notaclotamongus

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025
12:00 p.m.

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

Camper Packing List

Camp Flyer

2019  Camp Theme – Wild West

Click here to REGISTER – application deadline April 30

Jul 12-14

Family Education Weekend

As an organization dedicated to the education and advocacy for our community, we decided 23 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Aug 22

Wine Tasting Fundraiser

Location: Farotto's Pasta & Pizzeria
9525 Manchester Road Rock Hill, MO 63119
6:00 PM to 8:00 PM

tasting-wine

 

 

All proceeds from GHA’s Wine Tasting fundraising will benefit the educational scholarship fund for our members with a bleeding disorder who are furthering their education.

Click here to register!

6:00 pm to 8:00 pm – complimentary valet parking, wine and beer tasting. 
Samplings of Farotto’s appetizers. Tickets are $30 in advance, $35 day of event.

Sep 23

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:00 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

SCHEDULE:

10:00 am…Registration & Putting Contest

11:00 am…Lunch by Pappy’s Smokehouse, Silent Auction & Driving Range

12:00 pm…Shotgun Start

5:00 pm..…Reception & Silent Auction

5:30 pm…..Dinner & Awards, Emcee TBD

Oct 03-05

NHF Bleeding Disorders Conference

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s Bleeding Disorders Conference in Anaheim, CA, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate October 3-5, 2019.

 

NHF’s Bleeding Disorders Conference Info

Click here for GHA’s grant application, which is due August 1, 2019.

 

Nov 02

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED (Event sells out)

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

Register here!