Events

Feb 12

Winter Membership Meeting

Location: Bowlero Lakeside
1254 Dougherty Ferry Rd, Valley Park, MO 63088
12:30pm to 2:30pm

The members of GHA are invited to gather for a membership update, education, networking, and fun, while developing community. This event is only for individuals affected by a bleeding disorder and their immediate family. Space is limited, bowling will be distributed on a first come first serve basis. Attendees must attend the membership meeting to receive 2 hours of complimentary bowling, shoe rental, and light refreshments.

RSVP by February 4th to jmcnamee@gatewayhemophilia.org or (314) 482-5973

Title Sponsor:

Feb 23

Move beyond the threshold: Esperoct ®

Location: TBD
6:00 p.m.


Sponsored by:

Feb 26

CarneyVal

Location: Ameristar
1 Ameristar Blvd, St Charles, MO 63301
6:00 p.m. to 11:00 p.m.

CLICK ON THE IMAGE ABOVE FOR TICKET INFORMATION
CarneyVal is Carney’s Kids Foundation’s biggest fundraiser of the year. The Carney’s Kid’s Foundation provides financial support and creates positive exposure for the following local charities that help improve the lives of children:
  • Gateway Hemophilia Association
  • Litzsinger School                                                      St. Louis Crisis Nursery
  • Foster and Adoptive Care Coalition                          Eagle’s Wings
  • Ranken Jordan Pediatric Bridge Hospital                 Art Unleashed
  • Disabled Athlete Sports Association                         Sherwood Forest
  • Delta Gamma Center for Children with Visual Impairments

Mar 01-02

NHF’s Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

You can Register with NHF

Mar 07

Advocacy Day Training

6:30 p.m.

Learn effective grassroots advocacy techniques and how to do it virtually! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy.

RSVP to jmcnamee@gatewayhemophilia.org. After registering, you will receive a confirmation email containing information about joining the meeting. If you have any questions contact (314) 482-5973.

Advocacy Training: Zoom techniques, Sharing Your Story & Talking Points for Missouri Senate Bill 1031

Mar 09-10

Missouri Virtual Advocacy Day

Join us and let our voices be heard! With a united voice we can raise public awareness of bleeding disorders and shape public policy that improves the quality of life for all. Your voice and our mission are linked together. Our success as a grassroots organization depends on your advocacy. The registration deadline is March 1. Please contact us if you have any questions at  info@GatewayHemophilia.org. We will be advocating for support of MO SB1031

#AllCopaysCountMO State Capitol

Sponsored by:

   

Apr 20-23

HFA Symposium

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support! Register with HFA here!

GHA offers participant grants that are due February 18, 2022. Click here for an application.

Apr 29-01

Adult Retreat

Location: Margaritaville, Lake Ozark MO
494 Tan Tar A Drive, Osage Beach, Missouri 65065

We are stronger together!

The Adult Retreat is for adults with a bleeding disorder ages 20+. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN! Click here for the draft Agenda. Click here for more information on the Keynote Jim Stroker, ESQ.

Click here to register. Registration deadline April 1.

May 13-15

Men’s Retreat

Location: Margaritaville Lake Resort
494 Tan Tar A Dr., Osage Beach, MO 65065

This retreat is for men 21+ that live in GHA or MHA’s service area. To attend, you must also

1) have a bleeding disorder;
2) be a spouse of someone with a bleeding disorder; and/or
3) be a parent of someone with a bleeding disorder.

Register HERE by Friday, April 8.

May 19

Taste of Tequila, Splash of Charity

Location: Sunny's Cantina
6655 Manchester Ave., St. Louis, MO 63139
6:00 p.m. to 8:00 p.m.

GHA’s Annual Tequila and Margarita Tasting

All proceeds from GHA’s Tequila Tasting fundraiser will benefit educational scholarships for our members with a bleeding disorder. 

Featuring:

Tequila Tastings from participating vendors

Sunny’s Specialty Margarita or Beer from Molson Coors

Dinner Buffet from Sunny’s Cantina

Silent Auction & Live Music

Tickets are $50 in advance, $60 day of the event Register Here!

*must be 21+ years of age, space is limited

Questions (314) 482-5973  info@gatewayhemophilia.org

Jun 06-10

Camp Notaclotamongus

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

2022 Camp Theme – The Great Outdoors

Application deadline April 30

Click here to register!

Jul 08-10

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road, Chesterfield, Missouri, 63017

As an organization dedicated to the education and advocacy for our community, we decided 26 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

The deadline to register for the in person meeting is June 8, 2022.

Please contact info@gatewayhemophilia.org with any questions.

Jul 10

Unite for Bleeding Disorders Walk

Location: DoubleTree
16625 Swingley Ridge Rd, Chesterfield, MO 63017
9:30 a.m. (registration opens at 8:30 a.m.)

 

 

REGISTER YOUR TEAM HERE!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research.

Click here for the 2019 video!

Aug 25-27

NHF Bleeding Disorder Conference!

Location: Virtual & Houston, TX

Every year NHF’s Bleeding Disorders Conference brings together thousands of families and passionate professionals for in-person education and networking.

NHF’s Bleeding Disorders Conference Info

 

Sep 12

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:30 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start / 5:00 pm..…Reception, Silent Auction & Awards

The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts educational conferences specific to bleeding disorders, funds research, supports advocacy, provides educational scholarships, provides emergency financial assistance, dental assistance, medic alerts, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

Oct 14-16

Regional Women’s Retreat

Location: Margaritaville
494 Tan Tara Estate Drive, Osage Beach, MO 65065

GHA will co-host a Women’s Retreat with Midwest Hemophilia Association, Nebraska Chapter of NHF, and Hemophilia of Iowa, for women 18 and older with a bleeding disorder, carriers, and caregivers of a person with a bleeding disorder. Attendees must be a member and live in GHA’s service area. Registration deadline is September 9, 2022. Contact info@GatewayHemophilia.org with any questions.

 

Sponsored by

Nov 05

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Theme: TBD, all rounds will be around our theme. Prize to best dressed table.

Register HERE!

Advance registration and payment is REQUIRED Deadline is November 1!

$200 per table of eight ($25/person, individual seats are available, 4 person minimum per table) 

Beer, soda, water and light snacks provided!

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Trivia Flyer!