As we navigate the current health crisis together, our primary concern is, and has always been, the health and wellness of the individuals, families and communities that we serve.
In this unprecedented moment, being connected with each other is more important than ever. While we may be practicing social distancing, staying healthy means not falling into an unhealthy pattern of social isolation. Taking care of our emotional well-being, prioritizing self-care and staying engaged with the important people in your life are among the most critical things we can do during this time.
Our goal is to keep you as informed as possible. We will continue providing regular emails, but we also invite you to read these updates from our national organizations:
- National Hemophilia Foundation’s Medical and Scientific Advisory Council letter.
- Hemophilia Federation of America’s Online COVID-19 Hub.
- Statement from NHF’s CEO, Dr. Len Valentino on COVID-19
- MASAC Statement Regarding Home Delivery and Refill Under State of Emergency Declaration
- Update on Product Availability here
- Patient Assistance Programs
Presentation on 4/16/20 GHA & MO HTC Update
For more information please visit the CDC website that outlines the prevention and treatment options currently available.
List of Symptoms of COVID-19
Advice for Chronic Illness Patients — Preventing Loneliness
Emergency Assistance – GHA provides emergency financial assistance to community members in need. We are currently reviewing our program guidelines to ensure additional assistance is available to community members during this difficult time. Click here for an application.
Unemployment Services-MO click here
Unemployment Services-IL click here
The Families First Coronavirus Response Act (FFCRA or Act)
The Salvation Army – Cares Act Grant
Search here for free or reduced cost services like medical care, food, job training, and more.
PAN Foundation will offer financial assistance to Americans with existing medical conditions who have COVID-19 or are quarantined
because of the virus.
Assistance for people in Illinois click here.
Dial 211 for Essential Community Services click here
Ameren is suspending all disconnections for non-payment and forgiving any late payment fees for residential and business customers. Normal billing for customers’ usage will continue as usual but if you are having difficulty paying your bill, please contact Ameren’s Customer Care team or go to our Illinois payment assistance page or Missouri payment assistance page to learn about your options. Customer Care: Residential: 800.755.5000 (IL) or 800.552.7583 (MO) Business: 800.232.2477 (IL) or 877.426.3736 (MO)
If you’re impacted by the Coronavirus and need help with your natural gas service or bill, Contact Spire.
How AT&T, T-Mobile, Verizon and Sprint are offering relief to customers.
St. Louis COVID-19 Social Resource List
HFA’S COVID-19 RELIEF FUND
NORD
The National Organization for Rare Disorders is an American non-profit organization aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers. NORD launches Rare Disease Financial Assistance Program for those impacted by COVID-19: Click here.
Food Pantries
If you are struggling, follow the links below for a list of food pantries in Missouri and Illinois.
Please visit here for additional information about avoiding scams during this time of crisis.
Donations – Several people have asked how they can donate to community members who are struggling during this difficult time. Donations can be made by clicking here. All donations go toward supporting bleeding disorder families.