Newsletters

Gateway Connection, our GHA newsletter, is mailed to members quarterly. Electronic copies of the newsletters in pdf format are available below. To receive the newsletter via email, send your request to info@gatewayhemophilia.org.

Gateway Connection Articles

If you have an article or story you would like to submit to GHA for the newsletter, we would love to hear from you. Send your work to info@gatewayhemophilia.org. Also if you have something you have been looking for more information on, send us an email about it and we will do our best to research the subject. It is our goal that the Gateway Connection is an interactive way to share communication with our members, and feedback from you is what will make that possible.

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Upcoming Events
02/28/2024

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

03/03/2024

March Membership Meeting

Start Time: 12:30 p.m.

End Time: 2:30 p.m.

Join us for an update on resources offered from your chapter and HTCs. One of the best parts of being your own advocate is that you don’t have to solve all the problems on your own. You can and should ask for help. Register at carly@gatewayhemophilia.org by February 23.

Agenda:

12:30 – Attendees Arrival and Welcome

12:45 – Lunch

12:55 – Welcome from Executive Director

1:00 – Program

1:30 – 2:30 Yard Games and Pickleball Activity

03/06/2024

NBDF’s Washington Days

Make your voice be heard at NBDF’s Washington Days

Join us to:

  • Meet with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care
  • Learn effective grassroots advocacy techniques

GHA’s scholarship is now closed.

For more information and updates related to Washington Days 2024, visit NBDF’s website

chapter of excellence award from national hemophilia association 2017
chapter of excellence award from the national hemophilia association from 2018 - 2020

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