About

About Us

Mission

The Gateway Hemophilia Association is a nonprofit, community-based organization dedicated to the advocacy, education and support of families affected by bleeding disorders.

History

Our organization was formed in 1969 as the Bi-State Hemophilia Association. In 1987 we changed our name to the Greater St. Louis Hemophilia Association, then in 1999 to the current name – Gateway Hemophilia Association. This name reflects what we are today: a gateway to information and resources for those with bleeding disorders. We serve families in eastern Missouri and southern Illinois. Click for a map of our Missouri service area and Illinois service area.

Some of our members have been around since the beginning; others are new to the Association. But we all share the common bonds of advocacyactivity and mutual support.

Why We Serve Them

Bleeding disorders are life-threatening, debilitating, and expensive to treat. A child with severe Hemophilia will spend over $200,000 annually to prevent bleeding. Some children and adults build up inhibitors to the treatment and the costs can exceed $1,000,000 per year. Failure to preventatively treat the disorder can result in prolonged, painful bleeds that cause permanent and severe damage. Access to affordable and adequate health care is critical to being a self-sufficient, contributing member of society.

The entire family is affected by the bleeding disorder physically, emotionally, and financially. With over 50 years of experience, we provide programs and services to people affected by bleeding disorders so that they can better cope and can become advocates for themselves and/or their family. We partner with Hemophilia Treatment Centers, other agencies, and medical professionals to provide programs and services unique to those with bleeding disorders to best meet their needs.

How We Serve Them?

The Gateway Hemophilia Association strives to meet the needs of those affected by a bleeding disorder through several programs and services. These include educational scholarships, emergency financial assistance, summer camp, Family Education Weekend, and support groups for men, women, teens, and new families.

Historical Journey of Bleeding Disorders

2023 Annual Report

Click here to see GHA’s endorsement as an accredited Charity by the Better Business Bureau.

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Upcoming Events
02/28/2024

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

03/03/2024

March Membership Meeting

Start Time: 12:30 p.m.

End Time: 2:30 p.m.

Join us for an update on resources offered from your chapter and HTCs. One of the best parts of being your own advocate is that you don’t have to solve all the problems on your own. You can and should ask for help. Register at carly@gatewayhemophilia.org by February 23.

Agenda:

12:30 – Attendees Arrival and Welcome

12:45 – Lunch

12:55 – Welcome from Executive Director

1:00 – Program

1:30 – 2:30 Yard Games and Pickleball Activity

03/06/2024

NBDF’s Washington Days

Make your voice be heard at NBDF’s Washington Days

Join us to:

  • Meet with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care
  • Learn effective grassroots advocacy techniques

GHA’s scholarship is now closed.

For more information and updates related to Washington Days 2024, visit NBDF’s website

chapter of excellence award from national hemophilia association 2017
chapter of excellence award from the national hemophilia association from 2018 - 2020

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