The Gateway Hemophilia Association is a nonprofit, community-based organization dedicated to the advocacy, education and support of families affected by bleeding disorders.


GHA was formed in 1969 as the Bi-State Hemophilia Association. In 1987 the name changed to the Greater St. Louis Hemophilia Association, then in 1999 to the current name – Gateway Hemophilia Association. This name reflects what we are today: a gateway to information and resources for those with bleeding disorders. We serve families in eastern Missouri and southern Illinois. Click for a map of our Missouri service area and Illinois service area.

Some of our members have been around since the beginning; others are new to the Association. But we all share the common bonds of advocacyactivity and mutual support.

Why We Serve Them

Bleeding disorders are life-threatening, debilitating, and expensive to treat. The average annual cost of clotting factor therapies for a person with severe hemophilia is roughly $300,000. Failure to preventatively treat the disorder can result in prolonged, painful bleeds that cause permanent and severe damage. Access to affordable and adequate health care is critical.

The entire family is affected by the bleeding disorder physically, emotionally, and financially. With over 50 years of experience, we provide programs and services to people affected by bleeding disorders so that they can better cope and become better advocates for themselves and/or their family. We partner with Hemophilia Treatment Centers, other agencies, and medical professionals to provide programs and services unique to those with bleeding disorders to best meet their needs.

How We Serve Them?

The Gateway Hemophilia Association strives to meet the needs of those affected by a bleeding disorder through several programs and services. These include educational scholarships, emergency financial assistance, summer camp, Family Education Weekend, and support groups for men, women, teens, and new families.

Historical Journey of Bleeding Disorders

2022 Annual Report

Click here to see GHA’s endorsement as an accredited Charity by the Better Business Bureau.

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Upcoming Events

Camp Notaclotamongus

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

2023 Camp Theme – Holidays

Application deadline was April 30


Family Education Weekend

As an organization dedicated to the education and advocacy for our community, we decided 27 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Registration deadline June 16, 2023.

Please contact info@gatewayhemophilia.org with any questions.


Volunteer Opportunity

Start Time: 7:00 a.m.

End Time: 11:30 a.m.

We are looking for volunteers for GHA’s Unite for Bleeding Disorders Walk and 5K!

Volunteer Opportunities:

Set Up Crew: Setting up tables, tents, chairs, and directional signs at the walk site. Time 7:00 a.m. – 8:30 a.m.

Course Volunteer: volunteers will be on the 1 mile or 5K course to direct walkers and runners. Time 8:30 a.m. – 10:30 a.m.

Break Down Crew: Break down tents, tables, and chairs after the event is over. Time 10:30 a.m. – 12:00 p.m.


If you have any questions, contact info@gatewayhemophilia.org

chapter of excellence award from national hemophilia association 2017
chapter of excellence award from the national hemophilia association from 2018 - 2020

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