The Gateway Hemophilia Association
is a nonprofit, community-based organization, dedicated to the advocacy, education, and support of families affected by bleeding disorders.
An Introduction to Bleeding Disorders
Hemophilia
Hemophilia is primarily an inherited disease that does not allow blood to clot properly. There is a deficiency in the body of the necessary proteins, also called clotting factors, needed to stop bleeding. Hemophilia A is the deficiency of clotting factor VIII and according to the US Centers for Disease Control and Prevention (CDC), hemophilia occurs in approximately 1 in 5,617 male births.
Hemophilia B is the deficiency of clotting factor IX and affects about 1 in 25,000 males.
Von Willebrands
VWD is the most common bleeding disorder, found in up to 1% of the U.S. population. This means that 3.2 million (or about 1 in every 100) people in the United States have the disease. Although VWD occurs among men and women equally, women are more likely to notice the symptoms because of heavy or abnormal bleeding during their menstrual periods and after childbirth. There are 3 major types of VWD: Type 1, Type 2, and Type 3.
Upcoming Events
Camp Notaclotamongus
Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.
2023 Camp Theme – Holidays
Application deadline was April 30
Family Education Weekend
As an organization dedicated to the education and advocacy for our community, we decided 27 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.
Registration deadline June 16, 2023.
Please contact info@gatewayhemophilia.org with any questions.
Volunteer Opportunity
Start Time: 7:00 a.m.
End Time: 11:30 a.m.
We are looking for volunteers for GHA’s Unite for Bleeding Disorders Walk and 5K!
Volunteer Opportunities:
Set Up Crew: Setting up tables, tents, chairs, and directional signs at the walk site. Time 7:00 a.m. – 8:30 a.m.
Course Volunteer: volunteers will be on the 1 mile or 5K course to direct walkers and runners. Time 8:30 a.m. – 10:30 a.m.
Break Down Crew: Break down tents, tables, and chairs after the event is over. Time 10:30 a.m. – 12:00 p.m.
SIGN UP HERE
If you have any questions, contact info@gatewayhemophilia.org
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