The Gateway Hemophilia Association

is a nonprofit, community-based organization, dedicated to the advocacy, education, and support of families affected by bleeding disorders.

An Introduction to Bleeding Disorders

hemophilia text with blood drop symbol

Hemophilia

Hemophilia is primarily an inherited disorder that does not allow blood to clot properly. There is a deficiency in the body of the necessary proteins, also called clotting factors, needed to stop bleeding. Hemophilia A is the deficiency of clotting factor VIII and according to the US Centers for Disease Control and Prevention (CDC), hemophilia occurs in approximately 1 in 5,617 male births.

Hemophilia B is the deficiency of clotting factor IX and affects about 1 in 25,000 males.

Von Willebrands

VWD is the most common bleeding disorder, found in up to 1% of the U.S. population. This means that 3.2 million (or about 1 in every 100) people in the United States have the disease. Although VWD occurs among men and women equally, women are more likely to notice the symptoms because of heavy or abnormal bleeding during their menstrual periods and after childbirth. There are 3 major types of VWD: Type 1, Type 2, and Type 3. 

von Willebrand's Disease graphic and information

Upcoming Events

06/01/2024

Camp Notaclotamongus

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community. Registration closed April 30th.

Campers arrive Saturday, June 1st, drop off time is 12:00-2:30. (LITs ages 16-17 arrive May 31st) Camper pick up is Tuesday, June 4th at 10:00 a.m. Camper packing list.

2024 Camp Theme – Time Travels

Application deadline is April 30

07/12/2024

Family Education Weekend

As an organization dedicated to the education and advocacy for our community, we decided 29 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Registration deadline June 14, 2024. Register here!

Please contact info@gatewayhemophilia.org with any questions.

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