The Gateway Hemophilia Association

is a nonprofit, community-based organization, dedicated to the advocacy, education, and support of families affected by bleeding disorders.

An Introduction to Bleeding Disorders

hemophilia text with blood drop symbol

Hemophilia

Hemophilia is primarily an inherited disorder that does not allow blood to clot properly. There is a deficiency in the body of the necessary proteins, also called clotting factors, needed to stop bleeding. Hemophilia A is the deficiency of clotting factor VIII and according to the US Centers for Disease Control and Prevention (CDC), hemophilia occurs in approximately 1 in 5,617 male births.

Hemophilia B is the deficiency of clotting factor IX and affects about 1 in 25,000 males.

Von Willebrands

VWD is the most common bleeding disorder, found in up to 1% of the U.S. population. This means that 3.2 million (or about 1 in every 100) people in the United States have the disease. Although VWD occurs among men and women equally, women are more likely to notice the symptoms because of heavy or abnormal bleeding during their menstrual periods and after childbirth. There are 3 major types of VWD: Type 1, Type 2, and Type 3. 

von Willebrand's Disease graphic and information

Upcoming Events

09/09/2024

Tee off 4 Hemophilia

Start Time: 1:00 p.m. Shotgun Start

The money raised at this tournament will be used to fund the programs and services provided throughout the year to people affected by bleeding disorders. GHA hosts educational conferences specific to bleeding disorders, funds research, supports advocacy, provides educational scholarships, provides emergency financial assistance, dental assistance, medic alerts, bleeding disorder camp, support groups for men, women, and teens. Click here for pricing and registration.

10:30 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start / 5:00 pm..…Reception, Silent Auction & Awards

09/12/2024

NBDF Bleeding Disorders Conference!

NBDF’s Bleeding Disorders Conference brings together families and passionate professionals for in-person education and networking.

NHF’s Bleeding Disorders Conference Info

 

09/20/2024

Gettin’ in the Game Junior National Championship

GHA has been invited to send two individuals with a bleeding disorder between the ages of 7-18 to the Gettin’ in the Game event which will take place September 20-22, in Henderson, NV. Participants will have the opportunity to learn the fundamentals of their respective sport, participate in friendly competition, and have a chance to connect with fellow members of the bleeding disorders community from across the country. Additionally, educational seminars focusing on the importance of physical fitness and other related topics will be available on site. Each participant will have the opportunity to choose either golf, baseball, swimming, or basketball for this year’s JNC.

To be eligible for nomination by GHA, participants must have a bleeding disorder, be between the ages of 7-18, and live in the GHA service area (i.e. southern Illinois, eastern Missouri). Applications are due July 11, 2024. Click here for an application.

Proud Members of