The Gateway Hemophilia Association

is a nonprofit, community-based organization, dedicated to the advocacy, education, and support of families affected by bleeding disorders.

An Introduction to Bleeding Disorders

hemophilia text with blood drop symbol

Hemophilia

Hemophilia is primarily an inherited disorder that does not allow blood to clot properly. There is a deficiency in the body of the necessary proteins, also called clotting factors, needed to stop bleeding. Hemophilia A is the deficiency of clotting factor VIII and according to the US Centers for Disease Control and Prevention (CDC), hemophilia occurs in approximately 1 in 5,617 male births.

Hemophilia B is the deficiency of clotting factor IX and affects about 1 in 25,000 males.

Von Willebrands

VWD is the most common bleeding disorder, found in up to 1% of the U.S. population. This means that 3.2 million (or about 1 in every 100) people in the United States have the disease. Although VWD occurs among men and women equally, women are more likely to notice the symptoms because of heavy or abnormal bleeding during their menstrual periods and after childbirth. There are 3 major types of VWD: Type 1, Type 2, and Type 3. 

von Willebrand's Disease graphic and information

Upcoming Events

04/24/2024

Coffee and Copays

Start Time: 8:00 a.m.

End Time: 9:00 a.m.

Representatives of the All Copays Count Coalition will be at the Capitol on WEDNESDAY, APRIL 24 to host Coffee and Copays. We will be answering any questions about the all copays count legislation currently filed in the House and in the Senate from 8:00-9:00 am in Hearing Room 2.

04/26/2024

Adult Retreat

We are stronger together!

The Adult Retreat is for adults with a bleeding disorder ages 21+ within GHA’s service area. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN! Click here for a draft Agenda. Registration deadline is April 1st, click here to register!

05/09/2024

Give STL Day

 

DONATE HERE

You Can Make a Difference!
Join the movement and make a gift to benefit our community.
Give STL Day is an annual event which raises money and awareness for nonprofits in the St. Louis region. Since its inception in 2014, Give STL Day has raised over $26.2 million.

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