Events

Mar 22-24

Women’s Retreat

Location: The Lodge of the Four Seasons
315 Four Seasons Drive Lake Ozark, MO 65049

GHA will host a Women’s Retreat for women 18 and older that are caregivers of a person with a bleeding disorder or have a bleeding disorder themselves. The focus of the conference will be education, personal growth and networking. Sessions will focus on bleeding disorders, treatment options and most importantly relaxation!

Deadline to register was March 1, 2019. 

Mar 23

Blood Drive

To sign up for an appointment to donate blood contact Karen Dickinson, Mississippi Valley Regional Blood Center at kldickinso@mvrbc.orgor (314) 281-5613.

Mar 27-29

NHF’s Washington Days

Location: Hyatt Regency at Capitol Hill
400 New Jersey Ave NW, Washington DC 20001.

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

GHA’s Scholarship was due February 1, 2019

Register Today with NHF

Mar 31

Winter Membership Meeting

Location: Topgolf St. Louis
16851 N. Outer 40 Rd., Chesterfield, MO 63005
1:00pm

GHA members are invited to attend a membership meeting featuring a Gene Therapy Presentation by Christopher Walsh, MD, PhD. Lunch will be provided and complimentary golf will follow the presentation.

*This program is for consumers and caretakers of individuals with a bleeding disorder. Space is limited, golf will be distributed on a first come first serve basis. Attendees must attend the gene therapy presentation to receive complimentary golf.

RSVP by March 15th

Event Flyer

Apr 04-07

HFA Symposium

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

 

Click here to register with HFA or for more information.

 

Apr 14

Hemophilia Basics

Location: D. Rowe's Resturant
1005 Club Village Drive, Columbia, MO 65203
12:00 p.m.

The more you know about hemophilia, the more comfortable you’ll be managing it. This program discusses how hemophilia affects the body, as well as how bleeds are identified, treated, or can be prevented. Event Flyer!

RSVP to Jen @ jmcnamee@gatewayhemophilia.org

Sponsored by:

Apr 17

World Hemophilia Day

Supported by the World Federation of Hemophilia (WFH), hemophilia awareness day was first established in 1989. The date of 17th April was chosen to honor Frank Schnabel the founder of WFH, whose birthday falls on the same date.

Click here for more information and events for World Hemophilia Day. 

2010WHD_Logo_Eng

Apr 17

GHA’s 50th Anniversary Celebration!

Location: The Missouri History Museum
5700 Lindell Blvd, St. Louis, MO 63112
6:00 p.m. to 8:30 p.m.

Join us as we take a look back at the last 50 years and celebrate the history of GHA and bleeding disorders. Monuments will be lit in red for this event honoring World Hemophilia Day and GHA’s 50th year!  The event includes a seated dinner, cash bar, and an awards presentation. We will honor members from the community and Dr. Bouhasin will be presented with a Lifetime Achievement Award for his service to the bleeding disorders community.Click here to register! Early registration is $25 per person, which will increase to $30 after March 15.

Apr 19

World Hemophilia Day “Project Gratitude”

Location: St. Louis Zoo - The Missouri Room
Government Drive St. Louis, MO 63110
6:30 p.m. to 8:00 p.m.

Please join us at Science Matters, a family friendly event filled with learning and inspiration. We will raise awareness for hemophilia and honor progress in our community! RSVP to jmcnamee@gatewayhemophilia.org by April 12.

WHD

 

 

 

Sponsored by:

Apr 20

Camp Open House

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025
12:00 p.m. to 1:30 p.m.

CAMP PRE-PARTY!

This is the perfect time for future campers to gather for a relaxing and fun camp pre-party at Camp Notaclotamongus. New families interested in our camp will have the opportunity to experience our facility, our staff, activities, and meet us and see what we have to offer your children. Some “experienced” campers will also be there to answer your questions. Lets gear up for the summer ahead. Bring the family, or come alone, but please come! Camp Open House Flyer!

Please RSVP to GHA at: info@gatewayhemophilia.org Questions?  E-mail or call Bridget at: 314-482-5973

 

Apr 20

GHA Teen and Young Adult Day Hike

Location: Greensfelder Park
4515 Hencken Rd., St. Louis, MO 63069
10:00 a.m.

Click here for a map of Greensfelder Park

GHA’s Teen group and young adults will participate in an outdoor hike at Greensfelder park. This program is open for teens and young adults 16-25 with a bleeding disorder. They may also bring one person to hike with them.

Please wear proper clothes and shoes for hiking. Check the weather prior to the hike to prepare. Lunch, bottled water, and snacks provided. Questions contact Bridget at info@gatewayhemophilia.org or (314) 482-5973. RSVPs are required no later than 4/15.

Apr 26

It’s All In The Delivery

6:30 p.m.

Tickets for the 2019 performances are on sale NOW!

Tickets are $25 (includes snacks, beer & wine)

$20 of every ticket sold directly benefits Gateway Hemophilia Association

For tickets for this performance, please contact Trudy Stringer at (636) 575-4326 or trufanofabd@yahoo.com

Event Flyer

May 04

Volunteer Opportunity

6:00 a.m. to 12:00 p.m.

We are looking for volunteers for GHA’s Unite for Bleeding Disorders Walk and 5K on May 4, 2019!

Volunteer Opportunities:

Course Volunteer: volunteers will be on the 1 mile or 5K course to direct walkers and runners. Time 9:00 a.m. – 11:00 a.m.

Set Up Crew: Setting up tables, tents, and chairs at Cricket Field. Time 6:15 a.m. – 9:15 a.m.

Break Down Crew: Break down tents, tables, and chairs after the event is over. Time 11:30 a.m. – 12:00 p.m.

Registration Table: Hand out event t-shirts. Time 8:00 a.m. – 10:00 a.m.

If you have any questions or would like to volunteer contact: Jen at jmcnamee@gatewayhemophilia.org

 

May 04

Unite for Bleeding Disorders Walk & 5K

9:30 a.m. (registration opens at 8:30 a.m.)

 

Register Here!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. A 1 mile and 5K course are both offered. Chip timing available for the 5K at no additional charge.

Jun 05-08

Camp Notaclotamongus

Location: Camp Wyman
600 Kiwanis Drive, Eureka, MO 63025
12:00 p.m.

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.

Camper Packing List

Camp Flyer

2019  Camp Theme – Wild West

Click here to REGISTER – application deadline April 30

Jun 27

POSITIVE PSYCHOLOGY CAN HELP US THRIVE

Join us for an interactive workshop:

The Science of Optimism

Staying optimistic while navigating change through interactive exercises, attendees will discover how learned optimism can
help us navigate life’s transitions.

Developed in partnership with the University of Pennsylvania (UPenn) Positive Psychology Center
• Each UPenn trainer is an expert in his/her field with a PhD or master’s degree
• Take-home resources support further learning

 

Sponsored by:

Jul 12-14

Family Education Weekend

As an organization dedicated to the education and advocacy for our community, we decided 23 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Aug 22

Wine Tasting Fundraiser

Location: Farotto's Pasta & Pizzeria
9525 Manchester Road Rock Hill, MO 63119
6:00 PM to 8:00 PM

tasting-wine

 

 

All proceeds from GHA’s Wine Tasting fundraising will benefit the educational scholarship fund for our members with a bleeding disorder who are furthering their education.

Click here to register!

6:00 pm to 8:00 pm – complimentary valet parking, wine and beer tasting. 
Samplings of Farotto’s appetizers. Tickets are $30 in advance, $35 day of event.

Sep 23

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:00 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

SCHEDULE:

10:00 am…Registration & Putting Contest

11:00 am…Lunch by Pappy’s Smokehouse, Silent Auction & Driving Range

12:00 pm…Shotgun Start

5:00 pm..…Reception & Silent Auction

5:30 pm…..Dinner & Awards, Emcee TBD

Oct 03-05

NHF Bleeding Disorders Conference

When nearly 3,000 people gather in one place at one time they constitute a united front. That’s what will happen at NHF’s Bleeding Disorders Conference in Anaheim, CA, when kids and adults with bleeding disorders and their families, physicians and researchers, HTC providers, chapter staff and volunteers, and industry partners all congregate October 3-5, 2019.

 

NHF’s Bleeding Disorders Conference Info

Click here for GHA’s grant application, which is due August 1, 2019.

 

Nov 02

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED (Event sells out)

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

Register here!