Events

Jun 04

Talk or Dress Like a Pirate Day!

Your team will get 1 point if you post a photo dressed like a Pirate and 5 points if you post a video of you “talking like a Pirate. **Remember camp kids, you have an eye patch. Make sure you post to the Talk Like a Pirate Thread here! Must post by 8:00 p.m.

Jun 05

Virtual Campfire

7:00 p.m. to 7:30 p.m.

It’s a tradition to closeout Camp Notaclotamongus with a campfire on Friday night. Current, future, and past campers are invited to join us by Zoom to share a camp song and gratitude with fellow campers, counselors, med-shed, volunteers, and your parents this year! Register in advance for this meeting by clicking here. After registering, you will receive a confirmation email containing information about joining the meeting.

Click here for a virtual campfire.

Jun 18

Give it a Shot

6:30 p.m.

Join us for an educational session on Hemlibra. Register by clicking here.

Event Flyer!

Sponsored by:

Jul 10-11

Family Education Weekend

Location: Doubletree Chesterfield
16625 Swingley Ridge Road, Chesterfield, Missouri, 63017

As an organization dedicated to the education and advocacy for our community, we decided 24 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.

Click here to register!

Please contact info@gatewayhemophilia.org with any questions. 2020 Theme: You Always Need to Factor in Home

Jul 12

Volunteer Opportunity

Location: DoubleTree Chesterfield Hotel
16625 Swingley Ridge Rd., Chesterfield, MO 63017
6:00 a.m. to 12:00 p.m.

We are looking for volunteers for GHA’s Unite for Bleeding Disorders Walk and 5K on July 12, 2020 at the DoubleTree Chesterfield Hotel!

Volunteer Opportunities:

Course Volunteer: volunteers will be on the 1 mile or 5K course to direct walkers and runners. Time 8:45 a.m. – 10:30 a.m.

Set Up Crew: Setting up tables, tents, and chairs at the walk site. Time 6:15 a.m. – 8:15 a.m.

Break Down Crew: Break down tents, tables, and chairs after the event is over. Time 10:30 a.m. – 12:00 p.m.

Registration Table: Hand out event t-shirts. Time 8:00 a.m. – 10:00 a.m.

SIGN UP HERE

If you have any questions, contact Jen at jmcnamee@gatewayhemophilia.org

 

Jul 12

Unite for Bleeding Disorders Walk

Location: DoubleTree
16625 Swingley Ridge Rd, Chesterfield, MO 63017
9:30 a.m. (registration opens at 8:30 a.m.)

 

 

Register Here!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research.

Click here for the 2019 video!

Aug 01-08

NHF’s 72nd Virtual Bleeding Disorders Conference!

Every year NHF’s Bleeding Disorders Conference brings together thousands of families and passionate professionals for in-person education and networking. This year, in order to keep our community safe and help prevent the spread of COVID-19 we have made the decision to host the 2020 Bleeding Disorders Conference virtually.

 

NHF’s Bleeding Disorders Conference Info

Aug 14-16

Adult Retreat

We are stronger together!

Click here to register

DEADLINE July 15, 2020

The Adult Retreat is for adults with a bleeding disorder ages 20+. This retreat will allow you to connect with other adults living with a bleeding disorder. Each adult with a bleeding disorder may bring one significant other. You will learn something new and leave being empowered to be a better advocate. Connect during fellowship, food, education, and FUN!

GHA Skyline g

 

 

Aug 20

Wine Tasting Fundraiser

Location: Farotto's Pasta & Pizzeria
9525 Manchester Road Rock Hill, MO 63119
6:00 PM to 8:00 PM

tasting-wine

 

All proceeds from GHA’s Wine Tasting fundraising will benefit the educational scholarship fund for our members with a bleeding disorder who are furthering their education.

Click here to register!

6:00 pm to 8:00 pm – complimentary valet parking, wine and beer tasting. 
Samplings of Farotto’s appetizers. Tickets are $30 in advance, $35 day of event.

Aug 24-29

HFA Symposium

HFA’s Symposium is an annual community-centered educational event that draws hundreds of members from the bleeding disorders community together to share information, learn new advancements and build a network of support!

Click here to register with HFA or for more information.

 

Sep 14

Tee off 4 Hemophilia

Location: The Legends
625 Legends Parkway Eureka, MO 63025
10:00 a.m. Registration / 11:00 a.m. Lunch / 12:00 p.m. Shotgun Start

This golf tournament is the main fundraiser supporting GHA activities.  The money raised at this tournament will be used to fund the programs and services throughout the year to people affected by bleeding disorders. GHA hosts conferences, funds research, supports advocacy, provides educational scholarships, emergency financial assistance, dental assistance, bleeding disorder camp, support groups for men, women, and teens, as well as a youth golf team. Click here for pricing and registration.

The Legends

SCHEDULE:

10:00 am…Registration & Putting Contest

11:00 am…Lunch, Silent Auction & Driving Range

12:00 pm…Shotgun Start

5:00 pm..…Reception & Silent Auction

5:30 pm…..Dinner & Awards

Sep 16

Meet Jivi

Location: The Old Spaghetti Factory
17384 Chesterfield Airport Rd., Chesterfield, MO 63005
6:00 p.m.

Speaker: Jessica Lovercamp, RN

This Jivi Patient Program will review:

  • What is Jivi?
  • What is the safety and bleed protection information for Jivi?
  • What additional resources can I expect from Bayer?

Event Flyer

RSVP by September 10 to jmcnamee@gatewayhemophilia.org or 314-482-5973

Sponsored by:

Oct 16-18

Regional Women’s Retreat

Location: Margaritaville
494 Tan Tara Estate Drive, Osage Beach, MO 65065

GHA will co-host a Women’s Retreat with Midwest Hemophilia Association, Nebraska Chapter of NHF, and Hemophilia of Iowa, for women 18 and older with a bleeding disorder, carriers, and caregivers of a person with a bleeding disorder. Attendees must be a member and live in GHA’s service area. Registration closes September 1, 2020. Contact info@GatewayHemophilia.org with any questions.

Click here to Register!

Sponsored by

Oct 28

Save the date, please check back for more details.

 

Sponsored by:

Nov 06-08

Gettin’ in the Game Junior National Championship

GHA has been invited to send two individuals with a bleeding disorder between the ages of 7-18 to the Gettin’ in the Game event which will take place November 6-8, in Phoenix, AZ. The event will include competitions in baseball, golf and swimming. Selected nominees will receive hotel and airfare for themselves and one parent or guardian. Throughout the weekend, participants will have the opportunity to attend educational sessions to learn more about bleeding disorders and the importance of physical fitness and healthy lifestyles. Participants will also learn the fundamentals of golf, baseball, and swimming, proper stretching techniques, and the importance of safety on and off the field.

To be eligible for nomination by GHA, participants must have a bleeding disorder, be between the ages of 7-18, and live in the GHA service area (i.e. southern Illinois, eastern Missouri). Applications due July 30, 2020. For more information click here.

Nov 14

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED (Event sells out)

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

Register here!

Dec 31

2021

See below for the 2021 events!

Mar 03-05

NHF’s Washington Days

Location: Hyatt Regency at Capitol Hill
400 New Jersey Ave NW, Washington DC 20001.

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

GHA’s scholarship is due January 1, 2021. You can Register with NHF