Events

Oct 25

Health Insurance Road Map

Location: Maggiano's Little Italy
2 The Boulevard, Richmond Heights, MO 63117
6:00 p.m.

This program will provide you with the information to help make informed decisions about your health insurance. The program includes an overview of insurance options, information to help you navigate transitions that impact coverage, and the tools to help respond to insurance denials of coverage.

Event Flyer

RSVP to jmcnamee@gatewayhemophilia.org

Sponsored by:

Nov 03

Trivia Night Fundraiser

Location: The Pavilion at Lemay
305 Gregg Road (In Jefferson Barracks Park) St. Louis, MO 63125
7:00 p.m. (doors open at 6:00)

Advance registration and payment is REQUIRED (Event sells out)

$200 per table of eight ($25/person, individual seats are available)

 Beer, soda and snacks provided   

Questions, contact info@gatewayhemophilia.org or call (314) 482-5973. Event Flyer!

Register here!

Nov 08

Overcoming Challenges

Location: El Ranchirito
4303 Broadway St., Mt. Vernon, IL 62864
6:00 p.m. to 7:30 p.m.

This program offers an overview of coping with chronic illness, communicating with the health care team and others regarding hemophilia, financial considerations of health care through life stages, and the importance of staying physically active with appropriate activities.

RSVP by 11/5 to 636-675-4911 or jmcnamee@gatewayhemophilia.org

 

Click HERE for an event flyer!

Sponsored by:

Nov 09-11

Being Visible: Women with Hemophilia:

Location: Amway Grand Hotel, Grand Rapids, Michigan
187 Monroe Ave NW, Grand Rapids, MI 49503

This conference is an opportunity for women who have been diagnosed with hemophilia A or B, or carriers who are symptomatic.

The Hemophilia Foundation of Michigan (HFM) with financial support provided by Bioverativ, A Sanofi Company, and the Indiana Hemophilia and Thrombosis Center, Inc. (IHTC) will host this national conference.

Women who are eligible to join us at this inaugural conference will experience an amazing weekend learning from health care experts, and have opportunities to connect with other attendees who each bring their own unique wisdom and experience of living with hemophilia.

All interested participants are asked to APPLY for admittance to this conference starting August 21, 2018. There is availability for approximately 110 women and girls age 16 and older across the United States, diagnosed with mild, moderate or severe hemophilia A or B, or those who are symptomatic carriers for hemophilia A or B, to attend.

There is no charge for this weekend; transportation costs, hotel, and meals will be provided.

Current Conference Faculty

click here to see the most current sessions:

Questions? Please contact Patrice Thomas, HFM Program Services Director

734-544-0015, pthomas@hfmich.org

Dec 20

GHA Holiday Party

Location: Magic House
516 S Kirkwood Rd, St Louis, MO 63122
6:00 PM to 8:00 PM

Magic House

Event Flyer

RSVP Deadline 12-10-18 to  jmcnamee@gatewayhemophia.org or

(314) 482-5973

Jan 01

2019

Check out our events for 2019 below!

Mar 27-29

NHF’s Washington Days

Make your voice be heard at NHF’s Washington Days

Join us to:

  • Meet face-to-face with lawmakers and staff who shape national healthcare policy
  • Become more informed on critical issues that affect your continued access to quality care

Learn effective grassroots advocacy techniques

Register Today with NHF

Apr 04-07

HFA Symposium

Symposium is a family-friendly conference where topics that affect the entire family living with a bleeding disorder are addressed.  HFA understands that bleeding disorders are not a one size fits all medical condition. Dealing with or caring for a loved one with a bleeding disorder is a lifelong journey requiring diligence and flexibility in handling the challenges along the way. HFA Symposium offers community members the opportunity to learn and grow personally and collectively in becoming strong self-advocates! During our powerful sessions, community members can connect on a personal level with our presenters.

 

Click here to register with HFA or for more information.

 

May 04

Unite for Bleeding Disorders Walk & 5K

Location: Forest Park, Lower Muny Lot
#1 Theatre Drive, St. Louis, MO 63112
9:30 a.m. (registration opens at 8:30 a.m.)

 

Registration will open in December!

The money raised at the walk will be used to assist our overall mission to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, awareness, advocacy and research. A 1 mile and 5K course are both offered. Chip timing available for the 5K at no additional charge.

Jun 05-08

2019 Camp Notaclotamongus

Location: Living Well Village
3602 Lions Den Rd, Imperial, MO 63052

Camp Notaclotamongus provides campers with bleeding disorders a safe camping environment to learn about bleeding disorders, develop skills to care for themselves and to have fun! Camp offers the opportunity to meet new friends and participate in a variety of traditional camp activities, while developing future leaders of our camp and the community.Camper Packing List.

2019  Camp Theme – Wild West

Jul 12-14

Family Education Weekend

As an organization dedicated to the education and advocacy for our community, we decided 23 years ago to hold an annual education weekend for our members. At this conference we bring the members together and offer educational sessions on the treatment of bleeding disorders where they can have the opportunity to meet and network with other people who have the same disorder.